Tag Archives: Whole Lot

Question?: Autism Signs In Toddler Girls

Mary asks…

does autism get better?

My toddler who is 3 yrs old and 5 months is finally talking a little bit, she says “come on, baby up, all done, juice, candy, eat it, and things like that but its rare. Shes coming around really slow. its seems that now that Ive got her to talk a little, shes now rebellious! She wont drink out of her sippy cup, she wants a big girl cup and i have to stand and supervise her everytime she drinks; otherwise, she will spill it all on the floor. she also stopped using her spoon, she pushes it away and says “nope” and shed rather eat with her hands.
I wonder if it has something to do with the 1000iu of vitamin D3 I have her on. Since i put her on vitamin d3 she started to talk a whole lot but she lost her skills of using her spoon and cup, well she uses the open top regular cup just fine….anyway I want to know if your kid has regressed. Before u assume, she doesnt have rett syndrome or anything else, ive had her fragilex test done so its definately autism

admin answers:

I think the ages 2-6 are the most difficult when it comes to a child with autism , It is also the most important time to have your child in a early intervention program. I would not recommend giving vitamins or a special diet to a child unless it is under a Dr,’s care . It is really good that your child is starting to talk. My son did not tale in sentences until 5 years old. However he would repeat words he heard. It was not functional speech .I think some of the behaviors you described reminds me of a typical 2 year old. Trying to exert Independence and do things her way. It is a good sign, not bad. Offer a spoon at each meal , she will use it again. It is really good she wants to be “a big girl” by using a regular cup. My son did regress , but he was younger then your daughter. Most of it was speech related I really think your daughter is starting to test you and see how much she can do all by herself, these are all very good signs.
Autism is a developmental disability , a child does not always “catch up” with this disability.

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Question?: What Is Autism For Kids

Steven asks…

how to make kids with down syndrome and autism happy?

i mean how can i entertain the whole class of down syndrome or autism kids?

admin answers:

Music is generally a think that most kids like! Not only music but songs with lots of motion and dancing. It is important that you as the teacher/group leader have a lot of energy and enthusiasm. The children will (generally) respond better and enjoy it more if you are having fun and interacting with them.
My kids also love making block towers and knocking them down. We make obstacle courses, and with help, the children enjoy these. We do puppet shows. There are many many activities you can do…just be creative, and most importantly have FUN. It’s a whole lot more fun for the kids if you’re having fun too!

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Question?: Autism Symptoms In Infants

George asks…

What do you think about giving the H1N1 Vaccine to your kids?

I am wondering what other parents think about the H1N1 flu and the vaccine for your kids. Are you going to give it to them? WHat are the risks of giving the vaccine to our kids? At what age can a child have the vaccine?

What is your overall option on this subject???

Has anyone already gotten there child the h1n1 vaccine?

My daughter is 8 months old and I’m worried!!!

Please no rude comments.
Can the H1N1 vaccine cause autism?

admin answers:

My daughter is 9 months old. She will not be getting either the flu or the h1n1 vaccine.

My gut told me to hold back on vaccines for her. We haven’t done any. I had one doctor tell me that I was saving her from an “unnecessary poke” and another doctor screamed at me. Then, when my daughter was three months old (a month past the appointment where she would have gotten her first shots), she had a severe reaction to a decongestant. She was unconscious and unresponsive for seven hours due to four drops of a medicine. We have since learned that she has a severe hypersensitivity to certain drugs. It’s very likely that the vaccines, had she gotten them, could have harmed or killed her.

My point? Listen to your gut instinct. Do your research. Not just from the CDC site either. Read the news stories.

In Nashville, there is a hospital who is refusing to give or to take the h1n1 nasal spray because they believe it’s dangerous. The fact that a hospital believes that tells me a whole lot more than I get from a CDC site where they profit by pushing the vaccines. Money IS involved, and they do get it. They just find twisted ways to do it and say that they’re not related. Several news channels have had great stories on this in recent weeks.

H1N1 has had an outbreak locally for about a month now. One of my co-workers had it (he got it from his daughter). He exposed our entire office for two days while he was showing symptoms (supposedly it’s contageous for a couple of days before they even show symptoms, so we were probably exposed for 4-5 days). Not a single one of us got it. Of his family of four (including an infant son), only he and his daughter had it. And it was nothing more than a glorified cold.

Around here, the doctors just send people home for a week. That’s it. No panic. There have been A LOT of confirmed cases here and there haven’t been any deaths or serious side effects. Again, a glorified cold that the media is taking all out of proportion.

Statistically, if you compare the numbers, it’s actually a little better than the regular flu. People die from the regular flu all the time. The media is just scaring people and taking it all out of proportion.

Oh, and another thing – the shots themselves can and are dangerous. Just a couple of days ago, a (regular) flu shot killed a perfectly healthy eight-year-old boy in NY who had no underlying health conditions.

As for your question about whether it can cause autism, NO ONE knows for sure about any of the vaccines. The most anyone will say is that there is “no definitive proof” that it can cause it. Yet, even the DTAP vaccine has autism and sids listed as possible side effects. I personally believe that there are things in vaccines that can trigger autism in some children-children who are prone to get it possibly due to genetics or neurological issues, and that the vaccines just break that fine line that they were holding onto.

There is a lot of mercury in the H1N1 vaccine. They raised the allowable levels so that they could get this vaccine through, and that has been a concern about autism in the past.

I personally will not give it to my child and I will not get it myself.

Check out the Yahoo Group called “Vaccinations” for more information on anything that I said above.

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put me in coach

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I swear I’m not going to start putting up slide shows all the time.

Really, I promise.

But well, for the life of me I couldn’t figure out how to narrow down the photos from the other night, so I’m doing it just one more time.

It all started when Liz Feld asked if I thought that the girls would enjoy attending a Red Sox batting practice – maybe even sitting in the dugout, getting to meet some of the players.

I thought of my girls. Katie, I knew, would be over the moon simply to step on the field. Her sister, however? Well, perhaps not so much. But, there was something …

I answered honestly – Katie would be in for the whole kit and kaboodle. It would mean the world to her. And her sister would kill to meet Wally.

To the uninitiated, Wally the Green Monster is the Red Sox mascot. As you might recall, Brooke is a character girl. She loves her some random dudes in big costumes. And Wally? Well, he’s a legend around these parts. So I told Liz that if Brooke could get a chance to meet Wally, we were in.

And then I went home. And freaked out.

I thought maybe I should call Liz and tell her that I really appreciated the offer, but that she should really give the opportunity to some nine year-old kid out there who lives for the Red Sox – who knows every stat back to the seventies, who could tell each and every player his batting average and history in the big leagues.

And then I thought maybe I shouldn’t take her up on it because, as she (and everyone else who reads Diary) knows, though I think they do a LOT of amazing work, much of which they don’t get credit for, and though they have begun a number of initiatives to make themselves more representative of the whole of our community, I also I don’t endorse a whole lot of what Autism Speaks does.

Hell, I even felt guilty about letting Katie reap a ‘reward’ simply because she happens to have an autistic sister.

Yup, no one can over think a situation like an autism mom.

But then I mentioned it to Katie. Her eyes lit up. She jumped up and down. She may even have squealed a little, which is usually her sister’s domain. I was toast.

And so we went.

Katie had the time of her life. She met players, helped sort their batting helmets and gleefully told the equipment manager that everything smelled like baseball player sweat. She got a ball to keep and even scored an extra one that she gave to a kid in the stands. She beamed throughout the entire experience.

Brooke struggled. The early part of the evening was tough. Batting practice held no interest for her. It was hot. Really hot. Sitting on the bat kid bench in the dugout was torture. She lasted about three minutes there, two and half of which she spent crying. She said she wanted to go home again and again. But she didn’t. Because she knew what was coming.

As soon as we’d gathered on the field for the opening ceremonies (a full two hours after we’d arrived at the ballpark), the sky opened. Before we could blink, the Red Sox ambassadors had corralled us and shuttled us down the stairs into the concourse and into a holding room. We were told that the rain was expected to pass, so we’d be kept in the room for an undetermined amount of time while we waited for word from the weather folks.

So, to recap – kid at wit’s end, asking to go home, small room filled wall to wall with people, outcome unknown. I haven’t read Dante in a while, but I’m fairly certain that this was how he described the third ring of Autism Hell. I feared the worst.

Brooke shocked me. She was amazing. Beyond amazing. She watched Blue’s Clues in Spanish on my phone. She initiated scripts and I eagerly went along for the ride. We got silly. She cried, but we laughed far, far more than she cried. She was a superstar. Until about forty minutes later, when she declared that she was done.

“We would go out now,” she announced. I had no idea where we would go, but one way or the other, we’d go somewhere. It was just too much to ask of her to stay.

I took her to the door and told her that we’d go stand right outside the room, but that we weren’t allowed to go far. I explained that this was a special place at Fenway and that we had to stay close. She agreed. At that point, I think she would have said anything just to get out of that room.

As soon as we opened the door, she saw him. She screamed his name and began to run toward him at full speed.

I called her back. “Honey, I don’t think we can go there. Wait a minute, ok?”

She bounced on her toes and flexed her fingers. Her entire body vibrated. If she were a cartoon, her hair would have been standing on end.

One of the bat girls who was standing with him leaned over to him and said something. She’d been the one hanging out with us on the field. She knew what Brooke was there for.

He curled a giant green finger in invitation. She paused for a split second, confused.

“It’s ok, baby,” I said, “he’s telling you to come over.”

As fast as her little legs could take her, she sprinted toward his open arms.

I have never been so grateful to have had my phone in my hand. I snapped pictures as fast as I could. They’re in the slide show. You’ll see them all. They danced. She asked him if he was a banana. They played Follow the Leader. “Wally, put your hands on your tummy.” He obliged.  Wally can you sit down?” He did his best. My girl and Wally. Alone. No kids waiting in line for their turn, no babies crying, nothing. Just my girl and Wally. She never stopped smiling.

A few minutes later, the rain ebbed and we finally managed to get onto the field for the ceremonies. The girls had more time with Wally. They waved to the crowd. Their names were announced. They saw themselves on the Jumbotron.

By the time someone yelled, “Play Ball!” Brooke was toast. She and I headed home before the first pitch, leaving Katie and Daddy to enjoy the game. They had a blast. And in our own way, so did we. The parking lot where we’d left the car had flooded. Brooke couldn’t have been happier to wade through six inches of water to get to the car. “It’s a river!” she exclaimed.

Driving home, I still had a nagging feeling of guilt. It was quieter now, stifled somewhat by my children’s unadulterated joy, but I still wondered if I’d done the right thing accepting all of it.

I got home and posted a picture on my Facebook page. Friends and family were thrilled for the girls. One acquaintance had a question. “My kid loves the Sox. Got an in?”

I was exhausted. It was nearly 10pm. I’d been tap dancing since 4:00. My filters were off.

“An in?” I thought. “Sure, I have an in. Work your ass off. Be an advocate at every possible opportunity. Have hard conversations. Say stupid things publicly, get shredded for them and then tell everyone what you’ve learned afterward. Go to DC. Tell them what you’ve learned too. Be so visible and so tenacious that administrators and legislators and foundation heads can’t avoid you. Compose e-mails in the middle of the night to try to help guide an imperfect organization that you desperately believe can be – and will be – better if you, and millions of others, don’t give up on them. Have heart-wrenching conversations with autistic self-advocates. Facilitate other conversations – the ones with the people who need to hear from them, not you. When everyone raises a fist to the mysterious “They” and says, “Someone needs to …” be the someone who does. Do something. There’s your in.”

My reaction shocked me. I’m not usually one for self-righteousness and I’m never one for entitlement. But in that one moment, I was feeling just a little of both.

I looked over at my sweet girl. Even though it was nearly an hour past her bedtime, I was letting her decompress with some Dora al Rescado. Her official batting practice ball was tucked in next to her on her chair. She looked exhausted, but she was still smiling.

And just like that, all the guilt and all the self-doubt went up in smoke.

My girls deserved that night. Brooke, who works so God damned hard every day, deserved it. Katie, who stands guard and takes on all comers, proving her love for her sister bigger than her own fear of rejection, deserved it. And hell, ya know what? Luau and I deserved it too.

Now don’t get me wrong. I’m even going to highlight the next sentence just to make sure you don’t miss it, because this part is really important.

Our kids did not and do not deserve this any more than any other kid in the world did or does. And if I were Queen of the World, every single kid who wanted to would have the chance to do this kind of thing.

But this time, Mama happened to have an in.

And that’s ok.

I took the hair shirt off and took us up to bed.

So …

If I haven’t lost you all by now, here they are – the pictures. And I really do promise this will be the last slide show for a while. At around 2:23 you can see Katie heading into the stands to give her extra ball to a kid who she thought would like to have it. His reaction in the next couple of shots is priceless.

So here we go.

Play Ball!!

~

Ed note: Our endless gratitude to the folks at Autism Speaks for including us in this magical night – and for continuing to have the tough conversations. Thank you to Larry Cancro, Bobby Valentine and the entire Red Sox organization for their consistent support of our community and for hosting Autism Awareness night year after year. Thank you to the Red Sox ambassadors, bat girls and field staff who understood why I had to ask them to bend so many of their on-field rules and who so generously agreed to let us do what we needed to do in order to keep my daughter comfortable and safe. Thank you to the players, coaches and staff who took the time not just to sign Katie’s shirt, but to chat with her in the dugout and to make her feel important and special. Above all, thanks to the guy in the big green monster suit who made memories for my kid that neither she nor her mama will ever, ever forget.

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person first

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“…One thing bugged me and I don’t see how it still happens especially in this tight knit community. This is referring to a person with autism as autistic (I.e. my autistic daughter/son/brother/etc.). One big step we could all make as a whole is to utilize person first language a person with …(insert any disability)… as that is just a part of the person and their entire identity. If we want to stop the spread of insults and slurs based on a disability then we all need to use positive person first language as well.”

~ a comment from a therapist on the Autism Speaks Facebook page in reference to my last post

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If you were to sit down and read Diary from its inception back in 2008, I’m sure that you’d notice some pretty dramatic changes. For one thing, the writing itself is a whole lot less formal than it used to be. I used to think I was writing a college essay every time that I sat down in front of the computer. “For one thing” would have been, oh, I don’t know, “Firstly …” But there are far bigger differences too. Many of the words that I use and the way that I use them have changed. And the change in verbiage is reflective of a change – an evolution really – in my understanding of autism.

When Brooke was first diagnosed, I bristled at the word ‘autistic’ when it was assigned to her in conversation. I actually found it offensive. “Person first!” I would shout in my head as I calmly responded, “my daughter HAS autism,” emphatically yet (theoretically) politely ‘correcting’ the perceived gaffe.

And then, somewhere along the line, I read –> THIS <–.

And something shifted. I had never considered the words nor what they represented from the inside out. Reading Jim’s words turned the whole conversation upside down. The switch had been tripped on a life-changing evolution in my thinking.It changed me – or more accurately, it began a process of changing me. I started to think differently. I started to test it out – to feel it in mouth – autistic. I started to bristle less when I heard it. But didn’t adopt it completely. I wasn’t ready. And looking back, I can only conclude that I didn’t because I wasn’t ready to accept that autism was a PART of my kid.As my friend, John Robison points out in his book Be Different, when we talk about people having something, it’s something bad. He has cancer. He has a cold. He has the flu. When was the last time you heard someone say, “He has intelligence?” or “Wow, she really has giftedness and talentedness?”So when we say, “has autism” aren’t we conveying a message to our kid that what they “have” ain’t good?I come back so often to John’s words about the demonization of autism. They’ve made their way into heaven knows how many posts here over time. But there’s a reason for that.

For many of us on the spectrum, a parent’s stated quest to ‘cure’ autism feels sort of like a divorced parent constantly criticizing her ex in front of us kids. As that kid, I know I am half Dad and half Mom. So when Mom tells me Dad is no good, what is she saying about me?

If much of my life is defined by autism, and autism is a terrible thing, how do you think I will feel about myself? I ended up in special classes because I am autistic. I flunked out because I am autistic. I already know I am disadvantaged with respect to others who are not autistic. I don’t need more stuff to feel bad about.

There is nothing wrong with wanting to take away a disability. That’s a great goal and one that I fully support. What’s wrong is making something out to be ‘bad’ and then failing to take it away; leaving us with the ‘bad’ irrevocably bonded to us.

Moral judgement has no place in the world of remediating disability.

To the autistic adults that I know, and I have the privilege of knowing a lot of autistic adults, the idea that their autism could somehow be separate from their identity, removable, any less than an integral part of how they see and smell and taste and hear – and function in – the world is patently absurd. To one friend that I spoke with about the 50 Cent gaffe, the idea that the word itself could be an insult is laughable because he – and the autistic community of which he is a part – have claimed it – it’s theirs. Let anyone else use it as they will. It can’t hurt unless they allow it to.I am grateful to Jim and John and Lydia for giving me the language to ask, “So when we you talk about other parts of your identity, do you say that you have Jewishness? Catholicness? Gayness?”Because I have had the chance to explore and digest their perspectives, I now frame the conversation around the question, “If you are referred to as Jewish or Catholic, does that mean that the speaker who has described you as such has pin-holed your entire identity into your religious preference? If someone says ‘He’s gay’ have they somehow negated the fact that he also plays a mean guitar? Of course not.So just as one can be described as Jewish or Catholic or gay without taking away from any of the other possible descriptors, they can also be described as autistic and still be thousands of other things too. The word doesn’t negate the rest of a human being, it simply acknowledges and validates the reality of that person’s experience. Yes, I bolded that on purpose. Because for me, it’s the crux of this whole messy ball of wax.When Liz Feld and I sat down to talk the other day, this topic came up. We laughed that we’d recently begun to hear ‘he is with autism’. We agreed that it must have been someone’s idea of a compromise, but all we could think of upon hearing it was ‘he is with child’. If you really want neutrality, might I respectfully suggest, as Lydia does on her blog, that you go with ‘on the autism spectrum.’ It isn’t exactly personal, but at least it doesn’t sound like your kid has a bun in the oven.Since I know I’ve got some new readers joining in, I feel like I have to say the following. My thoughts here are just that – MY thoughts. They are, as everything here always is, based on MY experience with MY kid and in the context of the people in OUR world. I am not trying to tell anyone else how they should refer to their child, and I’d certainly never dream of telling anyone how they should describe themselves. These are intensely personal decisions. Decisions that I hope to God my daughter soon has the capacity to make for herself. In the meantime, I have to follow my gut to find the language that I think is the most respectful of who she is. Yeah, I bolded that too. My girl will undoubtedly face ignorance as she steps further into the world. When she does, I want her armed with an impenetrable wall of self-esteem. Of belief that just as there are serious challenges in her autism, there are also gifts – her incredible memory, her uncanny ability to repeat what she’s heard or read, her pitch-perfect imitation of accents – and so much more we will have the joy of watching emerge as she grows.When someone spits ‘autism’ at her as a dirty word, I want her to turn it back on them, framed as her own. “Yes, I’m autistic. So? I’m damn proud of it.’” Heck, she could even throw in, ‘I’m sorry that you’re not, but that’s not my problem,” for good measure. And so too, she can use it to connect with others like herself, to be a part of a community of understanding and support and pride. And thank God that community exists and awaits her – forged and fostered by adults – adults who, in my experience, choose to be called autistic.Ed note ~ To those of you who are coming here for the first time, welcome. I urge you, particularly if you are new to the world of autism, to read Welcome to the Club and D-Day. If you have any questions and are looking for some feedback, take them to the COMMUNITY SUPPORT PAGE. If you’ve got something that you want to brag about, take it to the COMMUNITY BRAG PAGE. If you want to join in the daily conversation, join me on Diary’s Facebook page. Thank you for visiting. I hope you’ll decide to stick around. 

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Dave Angel Parenting Aspergers Review

It is really difficult to raise a child with Aspergers, one must have the patience in order to guide a child well. It really time consuming, requires much patience and understanding on your part. It is like triple the parenting job you are doing to a normal child. But of course, we cannot blame a child for having Aspergers. It is not their fault  and it is not yours as well. The cause for such syndrome is not yet known.

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Taking care of a child with Aspergers can be a bit of challenge, If you do not know how to handle it you will be pissed, stressed and will give up immediately. Remember they are special children with special needs. They need to be understood by people. But many parents does not know how to cope and deal with the syndrome. They need to know how it is to do parenting aspergers.

Well if you do not know where to start you need a good book or guide to help you start out. Dave Angel is offering us a guide in understanding Aspergers in a new level. In this ebook you will learn how to improve your child’s diet, common medications used in Aspergers, tips on how to restore balance and sanity in your home brought about by a child with Apergers as well as how to cope with the late signs of Aspergers in adults.

Other than that one can also find a few things that are helpful. The right job for a grown up Asperger child, where to find the right support for your child, what you should need to know about your child’s emotions, how to prepare your child’s future, your role as a parent, how to help your child and a whole lot of ideas that are helpful for you and your child.

For only a few dollars, one can already have this resource guide. It comes with a risk free trial and with bonuses for only $51. One can avail this online. Do not make yourself stressed out and push too hard in raising your child. All you need to know is here in this guide. Parenting Aspergers is no joke, so let it at least be less harder for you. Grab the chance to avail this ebook now.

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This author writes about Parenting A Child With Aspergers and How To Cope With Aspergers.
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Essential Guide To Autism – The Essential Guide To Autism

Essential Guide To Autism

It is heartbreaking to realize that your loved one may be suffering from autism. Autism as a condition is perplexing to many parents but with the right information, you should be able to diagnose this condition right in the early stages. In this way, you will be able to provide your child with the right treatment and enable him or her to have a crack at normalcy. The essential guide to autism by Rachel Evans, an e-book on autism, points you in the right direction when it comes to dealing with this condition and what to do about it.

Did you know that male babies are more prone to suffer from autism than the female ones? Or that the number of autism cases is on the rise? The facts speak for themselves, for with 1 out of 150 babies getting autism, autism is becoming more common than cystic fibrosis.

Rachel Evans has done her research for her e-book contains all the latest up-to-date information on autism and the right way to treat it. The essential guide to autism enables you to identify autism by listing information on the three main signs of autism. The essential guide to autism gives you its take on all the current misconceptions about ASD [Autism spectrum disorder]. With an early diagnosis, you should be able to reduce the disruptive behavior of the child by as much as 66%. Autism is not a rare condition for today there are more than 1.5 million people autistic people in the United states, as you can see, you are not alone in this. Essential Guide To Autism

The essential guide to autism does a whole lot more than just pointing out on how to diagnose ASD. It provides a detailed and comprehensive look at the ASD history, the various definitions/conditions of ASD, a take on some of the treatments that do the trick and a review of those that do not.

Today, with so many specialists in this field, you would have thought that they would at least agree to follow a common course of treatment for some of the ASD disorders. But that is not the case, for each specialist seems to come up with their own course of treating this condition. With the essential guide to autism, you will at least come to know what it is all about and on how to take the right approach when it comes to autism. Essential Guide To Autism

Essential Guide To Autismis a proven Autism Solution for your Child.TryAutism, Aspergers, ASD Program and change child’s life forever!”
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