Tag Archives: Sleep

Question?: Rett Syndrome Research

Sandy asks…

rett syndrome-please help!?

Hi all> I asked this question before but didnt get any responses

Im doing some research on the genetic disorder Rett Syndrome (RS) & I am looking for some first hand accounts of the early stages
Ive frequented IRSF & MANY other rett syndrome pages but I am really looking for some information from people who have dealt with it on a hands on basis>
My biggest area of interest/curiosity is about the first “signs”

what were your first clues that something wasnt right
was it drawn out or did it just seem to happen overnight

admin answers:

I never had it but wanted to help. This is what my research came up with,
Stage I, called early onset, generally begins between 6 and 18 months of age. Quite frequently, this stage is overlooked because symptoms of the disorder may be somewhat vague, and parents and doctors may not notice the subtle slowing of development at first. The infant may begin to show less eye contact and have reduced interest in toys. There may be delays in gross motor skills such as sitting or crawling. Hand-wringing and decreasing head growth may occur, but not enough to draw attention. This stage usually lasts for a few months but can persist for more than a year.

Stage II, or the rapid destructive stage, usually begins between ages 1 and 4 and may last for weeks or months. This stage may have either a rapid or a gradual onset as purposeful hand skills and spoken language are lost. The characteristic hand movements begin to emerge during this stage and often include wringing, washing, clapping, or tapping, as well as repeatedly moving the hands to the mouth. Hands are sometimes clasped behind the back or held at the sides, with random touching, grasping, and releasing. The movements persist while the child is awake but disappear during sleep. Breathing irregularities such as episodes of apnea and hyperventilation may occur, although breathing is usually normal during sleep. Some girls also display autistic-like symptoms such as loss of social interaction and communication. General irritability and sleep irregularities may be seen. Gait patterns are unsteady and initiating motor movements can be difficult. Slowing of head growth is usually noticed during this stage.

Stage III, also called the plateau or pseudo-stationary stage, usually begins between ages 2 and 10 and can last for years. Apraxia, motor problems, and seizures are prominent during this stage. However, there may be improvement in behavior, with less irritability, crying, and autistic-like features. An individual in stage III may show more interest in her surroundings, and her alertness, attention span, and communication skills may improve. Many girls remain in this stage for most of their lives.

The last stage, stage IV — called the late motor deterioration stage — can last for years or decades and is characterized by reduced mobility. Muscle weakness, rigidity (stiffness), spasticity, dystonia (increased muscle tone with abnormal posturing of extremity or trunk), and scoliosis (curvature of the spine) are other prominent features. Girls who were previously able to walk may stop walking. Generally, there is no decline in cognition, communication, or hand skills in stage IV. Repetitive hand movements may decrease, and eye gaze usually improves.

Hope it helps.

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Question?: Adhd Kendrick Lamar

Carol asks…

RHH:what song made your favorite rapper, your favorite rapper?

It’s funny cuz for me it was “the city” by game and my favorite rapper Kendrick Lamar didn’t even rap he made the hook

admin answers:

@Shaun dumbass. Old wiz is the shit. But I lovee Kendrick Lamar. He’s a fucking genious. I first heard ADHD by him… & I love Curren$y.. Dont sleep on emmm

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Question?: Autistic Kids

Steven asks…

has anyone tried tranquil essential oil roll on for autistic kids?

I want to know if anyone has use the tranquil essential oil roll on for autistic kids to help them calm, relax them and help them concentrate and focus more? Also, what essential oil can I use to help my son sleep all night?

admin answers:

You probably know that tranquil is not an essential oil per say, but rather some companies custom blend of several oils that target focus and concentration. If you do use it, whatever it is (I did not look it up) use half the adult suggested amount. You should really go on the web and see if there are studies that tried essential oils for autism. One good place to start is vitasearch.com that has many many hundreds of clinal trials for many illnesses, and is written in easy to understand language. If you want something to help him sleep buy real Lavender essential oil and a plug in room diffuser like “scentball” from Earth Solutions.

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Question?: Schizophrenia Medication

Maria asks…

How do you get rid of restlessness from new medication for schizophrenia?

I’m on a new medication for schizophrenia called saphris and it’s making me REALLY restless and drowsy,i can’t sleep or anything .I go back to my psychiatrist in 9 days to see how the medication is going but i can’t not go to sleep why is this happening,how do you get rid of it? thanks a bunch xx

admin answers:

These symptoms may decrease or go away altogether once you get more used to the medicine. Of course tell your doctor any side effects as he may adjust your medication, change it, or add another. I would take the medication in the morning so that it will affect your sleep the least. During the day I would take a vitamin B-complex, and a B-12 (sublingual version) to help you be less tired and have more energy. One hour before bed I would take 3 mg of melatonin, 300 mg of calcium, 300 mg of magnesium with a small amount of protein and carbs. This combo will relax your muscles and nervous system, and increase your natural sleep hormones. None of them are sedatives. So they are completely safe to take with Saphris. You can get all these supplements at Walmarts in the vitamin section. I think you will find these additions to help a lot and are also healthy for you.

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Question?: Adhd Diet

David asks…

What are some alternatives to Ritalin and other medications, when treating ADHD in a child?

What are some alternatives to Ritalin and other medications, when treating ADHD in a child?

admin answers:

My son uses vyvance on school days only. The medicine comes with side effects, being mood, grumpy, and appetite, doesn’t like to eat, doesn’t go to sleep untill about 1030pm. We really hate the medicine, but grades have improved and teacher is happy. I feel pushed to keep my child on this… And they think it should be a miracle pill that makes you sit down and shut up. It just doesn’t work that way.Then on weekends we try controlling sugar and dye intake. People don’t realize that blue and red dye have a lot of adverse effects. So we don’t give the pill in the summer or any day he does not go to school and try diet. That helps, nice fresh foods instead of processed.

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Question?: Adhd Diet

James asks…

How were your results from the HCG diet?

I just started the HCG diet and was wondering how it worked out for others. If you could include your age, starting weight, end and current weight. & anything else that you would like to include like your hunger effects, etc. Thank you!

admin answers:

I have been on the drops for 9 days and have lost 12.5#!! I purchases drops (42 days supply) at prohcgdiet.com I thought I would have a hard time when I looked over the diet but it isn’t hard at all! I do struggle with ways of preparing food with the limited options but for this kind of weight loss I will deal with it!

I feel so much better already, I cut out coffee since I can’t drink it without creamer so the caffiene headaches were tough for the first 2 days but now I am fine. I sleep better, I am not snoring like I was and I am able to get up the first time the alarm goes off and feel full of energy all day. I am also taking Adderall for my ADHD, so this I think works as a great appetite suppressent.

It is sure worth trying!

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Question?: Schizophrenia

Thomas asks…

How bad is schizophrenia? How bad is it to live with schizophrenia in reality?

I am having trouble sleeping all through the night and I’m afraid that schizophrenia may be setting in…I assume the worst (schizophrenia) instead of anxiety, depression or just plain old insomnia, because I have a family history of severe mental illness…please let me now what onset schizophrenia is or is like, especially if you or a loved one has schizophrenia. thank you.

admin answers:

I’ve known a few people who have had schizophrenia. It is truly a frightening disease. I admit to hearing voices almost every day, which tell things that I don’t want to hear sometimes. They’ll tell me to do things, insult me, and just talk to me sometimes. It happens especially when I am alone. At night it is horrid, especially if I sleep on a floor (goes with a demon I think is taunting me). My pillow and blanket would literally play music. It’s like, if I think about a song, I can hear it. My brother doesn’t think I have it, but I know what I’m going through, not him. But whatever, you know? If you believe you need help for it, go get some if you can. You begin to confuse fantasy and reality, which is very confusing when you’re trying to think back to what happened when people tell you otherwise.

If you are unable to get support from family like I was at first, I can give you a think for support. It’s a wonderful community– the people seem to understand you, even if they don’t have the same disease.

I hope things don’t get worse for you. It’s no fun. Best of luck.

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Question?: Pdd-nos

Maria asks…

How can I get my autistic child to sleep through the night?

My daughter is diagnosed PDD-NOS and she has terrible night terrors, and I just want to know if anyone has any ideas to help her sleep through the night.

admin answers:

Hi There! Depending on her age, there are things you can try. One of the things I do is to stop the caffeine since it can last for 24 hours in a child’s system, and the same for sugary juices, fruits, candies, etc.

Start the bedtime process at the same time every night. Have a ritual like for instance my daughter would ask to have a cool, wet wash cloth to put over her eyes. Give her something that she can count on every night. Autistic kids don’t always want a bedtime story or a back rub. They may ask for something unusual like lining up the stuffed animals in a row.

Some kids are extra sensitive and hyervigilant in their sleep. Try to keep noise and activity in the home to a minimum. Don’t have the TV on loud or the other kids screaming. You can also try ear plugs with her. If light from the hall bothers her, you can roll a towel and put it down on the floor by the bottom of the door.

You can talk to her doctor about sleep medication. Everyone deserves sleep, especially the child terrorized by thoughts and dreams in the night. If she doesn’t sleep soon the whole family, you first, will become ill and depressed. It’s a matter of survival so don’t feel guilty for asking the doctor. Other parents need to walk a mile in your shoes if they have something smart to say to you about it.

If you need to email me please do. I have experience working with Autistic kids and adults. I will help any way that I can. Best of luck to you and yours.

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Question?: Autism Signs In Older Children

Carol asks…

What would you do if your kid body rocked and hit his head on things?

He is 6 yes old, non autistic who seems to get that he does it and still does it! It keeps my 8yr old awake and my 2yr old or if asleep wakes all of us!

admin answers:

Lots of kids rock and bang, especially if they feel stressed in some way. It is no big deal in most situations. You might want to have your son run and play outside more to relieve the stress of being a kid these days. Don’t let him watch too much TV or play violent video games. Make sure he is getting a good diet and enough sleep. If the rocking and banging continues or gets worse you might want to talk to his doctor, but I bet he/she will tell you the same thing I just did.

SOME children with Autism Spectrum rock or bang but it is a minor sign of Autism and if your son has no other symptoms he probably does NOT have Autism. Don’t let anyone scare you into thinking there is something wrong with your son!

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Question?: Schizophrenia Medication

Ruth asks…

Can schizophrenia medication cause these side effects?

My brother is on depokote and haldol, and is having weird side effects, such as feeling like his ankles aren’t there and as if his back is crooked and he can’t stand straight. I don’t know if this is a side effect from his medication or if it is a side effect of his illness. Anyone else experience this?
Another thing he has complained about is sleep paralysis

admin answers:

People can have weird side effects to any medication but if it is severe enough to cause him discomfort he should talk to his doctor about it. There are many choices of meds and some of the side effects related to antipsychotic use can end up irreversible. You can google AIMS if you like to see the list. (abnormal involuntary movement)

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