Tag Archives: Siblings

Question?: Asperger Syndrome Causes

Chris asks…

Is the recognition of personality and neurotic disorders a good or bad thing?

I understand that its beneficial for people who need medication. The reason I ask is that my Mum reads a lot of psychology books and has a very good understanding of various psychomatic ailments, but I think because she knows so much about such illnesses and disorders she has tried to “label” me and my siblings in a sort of “psychological hyprochondriac” kind of way. I was diagnosed with depression and as having Aspergers syndrome when I was 10 and I think the Seroxat I was on for ten years may have caused further problems. Also, my brother is 9 and she has successfully had him diagnosed for Aspergers Syndrome and Attention Deficity Hyperactivity Disorder – as far as I’m concerned has is a perfectly normal 9 year old. I’m just worried that my brother will grow up into the personality that she’s labelled him as like I did.
I am being ungrateful for my Mum’s help or do you think ignorance can be bliss with these sort of things?

admin answers:

The problem you’re describing is not with recognition of disorders, but their misdiagnosis.

That is, it’s a very good thing to be able to recognize disorders. Seeing them where they don’t exist, not so good, in fact, as you suggest, it can be harmful.

It’s not that ignorance is bliss, it’s that a little knowledge can be dangerous — that is, when it isn’t really knowledge, but is information being misapplied.

Wish I had some advice for you, but I really don’t know what to say.

I’m surprised that the people she took your brother to, who agreed with her “diagnosis” did so. I hope they know what they’re doing.

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Question?: Treatment For Autism In Babies

Maria asks…

What are your views on the MMR vaccine and autism?

Do you have children that you have decided to vaccinate or not, how are they developing? Please be honest – there is an epidemic of autism in this country (one in 130 kids!!!!!!) why the sudden increase over the last few decades if not the vaccines???? I’m petrified! I refuse to sentence my baby to mental retardation just because a doctor tells me to! HELP!!!!

admin answers:

You’ll have to make your own choice about vaccination. As the father of a 9 year old son with Asperger syndrome, a borderline autism spectrum, my experience was that he was developing quite normally, in fact above normal until he got the vaccine which did have thimerosal , at age 1 1/2. From then on he showed significant deterioration in verbal and social skills including eye contact and interaction. Before the shot he was beginning to speak and and react to his mother, siblings and I. He has been seen by the top experts in the United States, coast to coast, as we’ve spared no expense to provide the best medical treatment for him. His mother and I have undergone gene testing and have been determined NOT to have genetic markers for autism. No history of it in either of our familes at all. When I read and hear from all these naysayers pontificating that there is no connection between thimerosal /mercury vaccines and autism, I have to grin because without actually experiencing the results first hand they are only convincing themselves about what they believe and certainly not the heartbroken parents or children who suffer from vaccine related autism. And no, not every single case of autism is the result of vaccinations, but for the kids who suffer from it, the naysayers are doing a grave disservice to them and the public at large. So do what you feel is right for you and your kids and don’t let me or people who have opposing views to mine convince you one way or the other. But for those of you saying Aspergers syndrome is a “fad” I submit this: Asperger syndrome is named after Austrian pediatrician Hans Asperger who, in 1944, described children in his practice who lacked nonverbal communication skills, failed to demonstrate empathy with their peers, and were physically clumsy. Fifty years later, AS was standardized as a diagnosis, but questions about many aspects of AS remain. For example, there is lingering doubt about the distinction between AS and high-functioning autism (HFA);partly due to this, the prevalence of AS is not firmly established. The exact cause of AS is unknown, although research supports the likelihood of a genetic basis; brain imaging techniques have NOT identified a clear common pathology. This is fact not a “fad”.

I wish you and yours the best.

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Question?: Autism Signs In 3 Year Olds

James asks…

Does this sound like Autism in my 3 year old?

We waiting to go to the Children Hospital.For another opinion. But this is my DD actions everyday…
_rocks and spins toys.
_ Like to play by herself.(not with siblings or kids in school)
_no eye contacts.
_don’t like being touch.
_have no speech what so ever.

admin answers:

The speech delay may be an issue, but mainly you need to check if she is making an effort to communicate with others.

Rocking, spinning, playing by themselves, not making eye contact, and not liking to be touched are NOT signs of autism.

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Question?: Autism Signs In Children

Ruth asks…

How do you tell someone to get their child evaluted?

This family has one 5 year old with PDD a 18 month old who can’t sit up and rocks back and forth while on the floor, Dad wants him evaluated, but also has a 3 year old who has deffinate signs of autism too. Dad thinks he’s a genious bacause he is so drilled. How can we get Dad to see the light?

admin answers:

Try putting it to him like this since , since the other two do and seem to have autism It is a precautionary thing to have the middle child evaluated too. Explain that there are various degrees of autism and that some people w/ as are brilliant. Advise him that it is more likely for his middle child to have autism because his siblings do than some one who’s siblings don’t. As a parent of autistic children he should understand how important early intervention is. If all else fails ask him this. If there were even the slightest chance that his child had a life threatening disease like cancer he would have the child tested wouldn’t he ? The eval is just a test If the child doesn’t have autism what will it hurt?

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Question?: Treatment For Autism 2012

Donald asks…

If you are a parent/sibling/grandparent with or of a child with special needs…?

How open are you to sharing your story about his/her educational experience (good or bad) to be published in a text for future educators or practicing teachers?

I am currently pursuing a bachelor’s degree to be a intervention specialist for children with moderate to intense needs. I will graduate this year, 2012, and I am very interested in publishing a book of parent stories, whether the stories have to deal with the education system, families, growing up, initial reactions, etc.

What I am looking for is an answer to: How many families/parents/grandparents/siblings will openly share their story to enhance the education of others?

Thank you in advance for your interest and time.

admin answers:

I think you’ll find a great number of people who are willing to. I have a daughter with autism and belong to a mom’s group that has about a dozen or so moms who are able to meet Wednesday afternoons (there are other groups that run at other times so this is just a small subset of moms who are stay at home or have flexible work schedules), and I’ve found every single one of them remembers how hard it is to face something as daunting as a diagnosis of autism and finding your way through treatments, dietary help, and education that everyone is more than happy to share their experience and advice about their experiences.

You’re probably looking for people in the US (I’m in Canada) and I’ve only just started out with Junior Kindergarten so far (in a special school too – we only have to start facing the public system starting in September which we are not looking forward to), but if you can find the support groups out there you will find plenty of people more than willing to help you if they know it will help other parents in similar situations.

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Question?: Pdd-nos Checklist

Maria asks…

My son is being tested for autism/aspengers/bipolar?

My son is being tested for some disorders. He screams and cries a lot. Today he was told he was grounded so to defy me he decides to be mean to his siblings. So i put him in time out. He screamed and cried for a long time. i was told by a behavioral therapist to let him scream and cry and ignore it until he is over it. Well today my neighbors approached my home because of the crying and screaming because they thought my child was being harmed. First before asking they called the department of children and families. What am i suppose to do? I do not spank him or do anything physical to him but i feel i can not do anything about him screaming and crying and i refuse to give in to him. I worry for my child and i love him dearly but i do not know what to do to redirect him and to stop all the screaming and crying. please no rude comments and serious answers only. Thank you.

admin answers:

So, I truly do feel for you as my son has had some of these same special needs since he was very young. He has PDD-NOS and Sensory Processing Disorder. My son has explosive outbursts that have gotten less frequent, but for awhile they were almost nightly, if not several times daily. I often worried that the neighbors would call the police on me (we lived at an apartment at the time). My son would scream bloody murder and bang his head on the wall or floor. At times he would get physical with me and sometimes I had to raise my voice to get him to hear me over his screams. Luckily no one ever did call, but I was worried. I do not spank my child either, I tried when he was little, but with his special needs, spanking is not a good idea. We do time-outs, which aren’t always effective, but it gives us both a chance to calm down. I would suggest googling “autism” “sensory processing disorder” and “explosive child”. These sites will give checklists that you can go through to see what signs your child is showing. Plus, they have stories and hope from other parents that are in the same boat. “The Explosive Child” is a great book that I have begun reading… It explains the reasons for children exploding and shows that there really is a problem with their development of certain cognitive skills. Good luck. Once there is a diagnosis in place (if one is called for), if child services is called explain that your child has special needs and what the diagnosis is. Until then, if they come, let them know your child is being tested for autism spectrum disorders and bipolar disorder (really hard to diagnose in children). Assure them that you do not hurt your child but that these are the behaviors that he has. Trust me, I’m sure they’ve heard it before. Good luck and try to stay as calm as possible ( I know that it is impossible sometimes).

Email me if you want to talk further… I have the names of several good books and can at least be an understanding ear that’s been there and is still there. 🙂

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Question?: Autism Signs In 15 Month Old

Donna asks…

Is speech impairment an essential symptom/sign of autism?

Most autistic children do not speak normally.What are the other symptoms of autism?

admin answers:

Yes. Autism is typically recognized between 15 – 24 months old. Though it may not be diagnosed until much later. In those 9 months a child with Autism will begin displaying signs that may indicate and delay or regression. The earliest signs can come in the first year. A child that isn’t smiling when they are suppose to and tip-toe walking are common early signs. The first major signs are a delay in communication or a regression in communication. Parents of children with Autism usually describe either A. Their child didn’t start talking “on time” ( same time as peers) or that they stopped saying words they usually said before.(regressed) . The delay in communication is usually paired with a sense of confusion or disconnect the child may have with peers or siblings. Example not responding when name is called, not making eye contact, unable to follow simple instructions, parallel playing with peers, not engaging in conversations with peers. Because of the lack of speech and communication the child may become frustrated and display tantrum behavior. Tantrums usually take the place of words early on in children with Autism. Behavior can also be due to the fact that the child is very particular with how they expect things to be or happen. They can have rigid routines and not like transitioning. These are also sensory issues that most children with Autism have. Other sensory issues include sensitivity to loud sounds, touch and textures. There are many other signs but these are the typical first major indicators. There are several levels of Autism the earlier Autism is recognized and therapy begins the better the outcome.

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Question?: Autism Signs In Children

Ruth asks…

Any tips on potty training kids with autism?

My daughter has autism and will be 3 next month. I really don’t know how to potty train her since she has limited verbal skills and can not tell me when she needs to go!
I have consulted with “experts” but I would like some tips or feedback from parents or caregivers that have been there as well.
MeShell, we are in Texas too! She is starting school next month when she turns 3.

admin answers:

Toileting can be difficult especially if there is a disability present, some children take longer than others to make the transition, so don’t feel disheartened if she does not want to do it yet, just let it go for a week or two and try again.

Start by keeping a record of the times she is has wet and soiled herself (in her diaper/nappy) over a period of a week or two, with any luck you will have a idea of approximate times, if not a pattern she is going. And then try to have her sit on the potty or toilet around these times.

Make sure has a big drink, every time she has a meal, to encourage the need for elimination, usually children will need to go to the toilet within half an hour after a meal, so this would be a good time to have her sit on the toilet/potty, you will have to do this after breakfast, lunch and tea as part of her routine.

Modeling is another way of encouraging children to use the toilet/potty. The idea is for her to see you actually sitting on the toilet, and see whats in the toilet after you have finished, let her flush the toilet, and then wash hands (all of which are part of toileting). If you reluctant to sit on the toilet in front of her, other siblings are usually more than happy to show others how to wee etc. With boys a ping pong ball with a target or an bulls eye painted on it, and then placed into the loo, the boys love seeing it whiz around, it also teaches them to AIM into the toilet not at it.

Be sure you tell its toilet time, before taking her so she becomes familiar with the word, even when you need to go so she knows its something everyone has to do. As she is not verbal you can teach her the sign for toilet, you may like to draw a picture of the toilet and show her every time your take her to the toilet (you can buy picture cards, but it can be expensive, check links below)

But don’t let her sit on the toilet for more than 10 minutes as she will become bored and resist sitting, have a few toys for her play with while sitting (ones that can be washed easily). Saying that NEVER use the toilet or potty as punishment for soiling themselves, as you will find yourself back to square one.

Be mindful of the toilet flushing upsetting her as it can be a bit noisy for some autistic children, also doing pooh can be a bit frightening too, this can be overcome by modeling as above.

If she does do a wee or pooh make a huge fuss, and tell daddy or grandparents how clever she is.

I use a mix of Makaton sign language and compics to communicate with my clients. Boardmarker is really good program but is a bit expensive too, but well worth the money.

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Question?: Autism Symptoms In 7 Year Old

Carol asks…

Do you vaccinate your children or not? Did you research this decision or did you just follow the doctor?

And what helped you come to your decision?

This is not to start a debate, I am just looking to see how people made their decisions.
My loser ex is the father. Why did I get back in bed with him? Because he was my first love and the person I lost my virginity to, and I still loved him at the time. Does that answer your question?

admin answers:

We began vaccinating our oldest in 2000. The info out there are thimerisol wasn’t main stream yet. I did delay but he was a preemie. We stopped after he had severe adverse reactions including most of the following:
Notice that the majority of these adverse reactions are symptoms of autism. And yes, my oldest does have an autistic spectrum diagnoses, and ADD. Nobody, including a number of specialists believe my son had autism prior to the injury after viewing videos of his engaging eyecontact, typical speech, lack of repetitive behaviors, outgoing personality, ability to follow commands and so forth. Notably, my son began crawling at 7 months, sitting, walking at 12, talking at 12, had 50 word vocabulary by 15 months and then regressed. He couldn’t sit, talk, wave, point, hold eyecontact, stand, walk, point and began headbanging. This lasted till 28 months when he began walking and sitting again. He began talking again at 4. Thank god we had sense enough to stop vaccinating, and he is high functioning because of that fact. Many kids we have gone through intervention with that were the same functioning level continued to vaccinate, and decline, and none that I have met have done a 180 like he has.

At the time of his reaction, his uncle, my husband’s brother, his colon ruptured. He had developed severe gastroenteritis diagnosed colitis. He is the only sibling to have any bowel disease, and his colon ruptured at age 23. All his other 4 siblings are too old to have gotten the combined MMR and they are all fine. He however is severely disabled. He has pancreatitis, and insulin dependent diabetes. He is incontinent of stool. They built a pouch out of his small intestine. It leaks. He bleeds out, and is severely anemic. He can’t work. He wears depends 24/7. He wishes he were dead everyday.

-Cancer is caused by vaccines so is diabetes (Classen and Classen and the hib).
-Measles kills 1:1000 so statistically 1 person every 10 years, much lower than the 72 dead from the measles vaccines listed on the gov’t site that is since 1988, so the vaccine is killing 10x more often than the disease.
-in ten years, should the herd immunity be in danger if vaccines fall below 85 percent compliance (currently they are 98 percent) then I am certain there will be green vaccines, vaccines in single dose vials, and titers drawn to be certain of immunities, and routine allergy testing. Do all that, and many non vaccinators would vaccinate.
-ingesting in the GI tract, mercury from fish, or chemicals in antibiotics or even drugs is not the same as injecting into the bloodstream.

Wow, I have never been called the Greek physician Hippocrates before!

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Question?: Autism Signs In Toddler Girls

Mary asks…

does autism in the family?

I am adopting a child who’s mother is mentally retarded, she also has another kid who has autism. What are the chances of this baby having autism or anything else. What are signs of it?

admin answers:

Yes, autism does run in families. The current thinking is that a sibling has a greater chance of developing autism with a close relative with the disorder, but there may be contributing environmental factors. Some of these factors might be exposure to high levels of mercury, digestive problems such as enzyme deficiencies, perhaps a virus, etc. There are some things you can do to lessen the odds of your baby developing full-blown autism, and I’d be happy to list a few.

1. Consider a delayed schedule for routine immunizations. There is some evidence that children at risk for autism may not be able to process the mercury present in vaccinations very well, which may affect the brain development.

2. Try a gfcf diet for a few weeks if you have a toddler, and see if his general behavior becomes more social and healthy. This is especially important if the child has frequent diarrhea. This is a sign that he is not digesting his food properly, which can seriously impact his development and behavior! There is a lot of info on the gfcf diet online for you. For an infant, consider soy formula, which is slightly less allergenic to these kids than dairy.

3. Stay away from large amounts of artificial and dyed foods. Autistic kids tend to be very sensitive to red dyes in particular.

4. Be aware of early signs of autism at around 12-15 months, such as the child not communicating through grunts or gestures, not pointing at things he wants you to see, and having a lot of trouble winding down at night or when stressed out. Feel free to email me if you need more help at that point, or have any questions.

5. Autism is four times more common in boys than girls. There is no real probability out there for siblings, but I’ve heard 1/32, 1/20, etc. I’d say that many siblings would be “sensitive” to developing autism, but for some reason, not all of them do.

I am the wife of a man with Asperger’s syndrome, (a form of high functioning autism) and the mother of three kids, one of whom has moderate-severe autism. We caught it early and he is making huge amounts of progress with proper treatment, so early intervention is key. Explore the use of digestive enzymes, which are a food product and are very safe, and don’t be afraid to ask other moms with autistic children for advice. Oftentimes, they know a little bit more than the doctors do when it comes to play therapy of nutritional supplements that can be helpful. Try the autism research institute and Dr. Bernard Rimland for a balanced perspective on the disorder.

Feel free to email me for more info.


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