Tag Archives: Pervasive Developmental Delay

Question?: Pdd-nos Checklist

Donna asks…

Autism / Asperger’s Questions?

I strongly suspect my 2 1/2 year old son has some form of Autism. The only thing that makes everybody a little skeptical is that he shows plenty of emotion, imaginative play, and really looks at you when he’s communicating with you.

Now the reasons I think he is Autistic are that he has yet to develop speech, no social play with his age group, stacks or lines up objects, sometimes tiptoe walks among other little things.

Is it possible for a child that has these characteristics to have Autism or even Aspergers?

Currently I live in Mexico and they more reluctant to diagnose you with Autism here and appears they are not as prepared to deal with this disease than we are in the states(I am an American Citizen married to Mexican woman)

What are some effective home therapies that me and my wife can use on my son while we wait for his documents to arrive so we can have him treated in the States?

Thank You

admin answers:

You aren’t going to come by a diagnosis of asperger’s with a speech delay, that isn’t to say that is not what it is, and that could be flushed out later. Still since the DSM-IV states you cannot have a speech delay and asperger’s only really cutting edge docs will give a r/o dx of asperger’s syndrome with a speech delay only not at his age usually, about 4.

YES, its very possible to have some features of autism, some typical features, and even some asperger features. This has a diagnosis of its own, called PDD.NOS (pervasive developmental delay not otherwise specified. It’s atypical autism, or autistic features.

I remember being confused about the PDD.NOS diagnosis, as I watched my 2 yr old son in the neurologist office feeding a baby while talking on the room phone (that’s a lot of pretend play going on for an autistic kid, or so I thought). He also lined toys up at that age.

Here is a great indicator as to where your son is falling on the spectrum:
http://www.childbrain.com/pddassess.html

Try to make his repetitive play functional. Try to elaborate it. Set up 1:1 playdates. Look into educating yourself on sensory integration. Look at the sensory processing checklist

http://www.asperger.net

For speech, receptive (understanding of language) comes first, so focus on that. Do not use flashcards, they hold little interest to kids of this population, anything 2-D skip. Get the actual object. Ask him to differentiate between 2 common objects. A duck, a ball. Then try to get him to identify the one you are asking for.

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Question?: Autism Signs 2 Year Old

Ruth asks…

Do you know a child with mild autism who has succeeded in a regular ed classroom?

My three and a half year old son has mild autism. He would appear fairly normal to people except for his unclear speech, his over enthusiasm, and his tantrums when he doesn’t get his way. He can’t seem to sit still in his pre-K class.
I would love to hear some success stories from families dealing with a similar child. Did they learn how to speak well? Control their emotions? Graduate from college?
I’m looking for a little hope after a tough day.

admin answers:

Both my kids…one now in college at age 22..one in high school…had speech therapy but otherwise all “regular” classes. Anger was a big issue for both and we put their emotional learning needs before the didactic (book) learning. For instance, when the teachers wanted the boy to attend gifted and talented, we said no…he needed to stay with the kids he knew to keep learning how to be a good friend, so he could grow up to be a mentally-stable person. He would get very angry sometimes and we saw it as a warning sign. Our focus worked…he is a gentle, wonderful 16 year old now, and he takes honor courses in high school to help his educational needs. Now the older one really threw temper tantrums, and at the time, we were less experienced parents, and it shows. She still has anger problems. We hated all meds and did not use them long…they made things worse, as did almost every so-called professional we consulted. Eventually I learned what helps…I would highly recommend the exercises for children with PDD-nos (pervasive developmental delay disorder, non-specific). Get a hammock. Convert a room into an exercise and bounce around room if you can. If someone suggests something to try, and it does not work, try something else. Most important, be a strong force, together with your partner, in front of the child. Save all criticism for later, in privacy, and safeguard your marriage (partnership). Be a strong advocate for your child. If the teachers or others don’t want to help, find someone who will, and/or do it yourself. Provide the extra teaching at home. Keep him on a routine, but push his boundaries once in a while to get him used to change, and teach him how to deal with new situations. Mine liked to practice at home, away from others eyes, like how to throw a football. I love my 2 and would not trade them for anyone else’s life. And try not to worry if he goes into special ed. There are nice kids and families there.

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Question?: Pdd Nos Symptoms

Maria asks…

Autism when was the first case diagnosed? Did it start with Mercury exposure?

http://www.earthtimes.org/articles/show/56227.html
my daughter has autism and severe mercury poisoning!!!! WHY???

admin answers:

Two of my kids have a form of autism called PDD-NOS (pervasive developmental delay, not otherwise specified). One has mercury and aluminum poisoning, and my son has aluminum poisoning. We measured this in their hair, urine and blood. My older daughter with mercury poisoning and symptoms got shots with mercury as a baby before this was removed. I also got a flu shot containing mercury while I was pregnant. My young son is no longer autistic after treatment to remove aluminum (zinc supplements, elimination of aluminum in diet and melatonin). Both of my affected children became autistic overnight…stopped speaking completely for several weeks, not gradually as autistic specialists try to convince parents, my son stopped smiling, laughing, saying mama and cheering when his dad came home from work all the morning after he received shots at 15 months, coincidentally the most common time for children to develop symptoms of autism. My son was discharged by all of his therapists within 2 weeks of when we began treatment for aluminum poisoning; none of his therapists had ever seen a child recover so well or so quickly. They have shared this info with other parents, and so far, of 20 children tested, 18 have been found to have aluminum poisoning as well, and some also had mercury poisoning. This really does happen.

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Autism – Help With the High Cost of Therapy

Having a child diagnosed on the Autism spectrum is difficult and heart breaking for parents. There are so many unknowns with which to contend. How functional will the child be as an adult? How severe is their specific diagnosis? As a spectrum of developmental disorders, diagnoses can range from classic autism to high functioning autism, from Asperger’s syndrome to Pervasive Developmental Delay. Each has different challenges and potential outcomes in terms of a child’s development and later independence. Once the initial shock of the diagnosis wears off, however, there are additional challenges in terms of paying for treatments and therapies.

For a young family without healthcare insurance, an autism diagnosis can be even more difficult to face. Treatment for autism includes occupational therapy, play/socialization therapy, behavior modification therapies, visits to developmental pediatricians, neurologists, psychologists, and even psychiatrists when needed. Children on the spectrum may need a variety of medications at different times in their development to help with things such as anxiety, impulse control, and other challenges. It often takes a team of medical and developmental professionals for a child on the spectrum to reach their full potential and learn to overcome some of their challenges. These multidisciplinary teams and their suggested treatment options are expensive for someone without insurance.

Even those families who have health insurance often struggle with overwhelming costs not covered by medical insurance. Adaptive toys, therapeutic equipment, and home safety devices are often not covered. Children with autism are characteristically wanderers, requiring parents to invest in specially designed home security systems that warn them if their child opens a door or window during the night or while the parent isn’t looking. These systems can cost hundreds or thousands of dollars. Likewise, therapeutic tools such as weighted clothing and sun lamps for sensory issues are not covered by every healthcare insurance plan.

Numerous organizations and charities can assist with out of pocket expenses relative to an autism spectrum diagnosis. There are loaner programs for equipment, charities which help find donated equipment, toys, and home therapy tools. There are also nonprofit organizations that can assist with respite care, play therapy, and appropriate day care arrangements for children on the spectrum. For families who are uninsured, underinsured, or simply cannot bear the burden of out of pocket expenses, the best place to start is your local community health agencies. The health department, department of human resources or family and children services, or local children’s hospital can point you in the direction of many resources designed to help families struggling with autism.

If you need assistance in locating particular coverages at a pre-determined price, we can help save on health insurance.

Sean L Johnson is a journalist for Health Insurance Buyer a referral service that refers consumers to the insurance carriers that can best fit their wants and needs. Get a free reduce quote today at www.health-insurance-buyer.com.

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