Tag Archives: Little Girl

Question?: Rett Syndrome Causes

Linda asks…

is there a car disability company in ireland that’s lets u pay monthly,my little girl has retts syndrome?

i have been told that i do need a disabilty car with ramps,so her wheelchair can go in the back but no-one tells you where you are supposed to get the money from,im a single mother to 4 kids and on benefits so there is no way i could get a loan.

admin answers:

Ask the Wheelchair Association in your area http://www.iwa.ie/contact/Default.aspx
or phone the headquarters in Clontarf, Dublin Tel: 01 8186 400

My brother in law is in a wheelchair and advises that there are grants available, and you (the driver) may get more than the disabled person herself. The Wheelchair Association no longer gives out loans but they will have good info about your entitlements.

From my own experience, I can recommend credit union for a loan. They are firmly on the side of members, and not just out to fleece you like many other financial places. You can have up to 5 years to repay the loan, and they try to match repayments with what you can afford to pay without hardship. There are credit unions all over Ireland – find your nearest one, and ask about the benefits of membership.

If your little girl (or her brothers and sisters) are at school, ask there for help to organise a fund-raising function to help provide this needed car. Irish people are great about supporting needy causes, and helping someone close to home in her own community should get a positive response. The Wheelchair Association do fund-raising too, and may either help in some way or give you ideas that you can use to fund-raise.

Good luck !!!

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Question?: Autism Signs In Toddler Girls

Jenny asks…

3 month old Autism advice?

Hello,

My 3 month old daughter is unfortunately showing the signs of Autism. Our Pedi is asking us to wait 2 more weeks to see if she starts to make better eye contact and starts to smile but in my gut, sadly, I feel like this will be the diagnosis. We have already called a specialist who wont be able to see us until August.

My question to the group, is there any advice in terms of treatment or exercises I can do with the baby to help her along? I feel helpless and want to do anything I can to help my little girl.

Thank you in advance for your replies
I truly appreciate the posts so far. 2 follow ups 1. We had her eyes checked last week and she passed with flying colors. 2. According to several websites early signs of Autism can be detected in 3 months http://www.parents.com/baby/health/autism/autism-month-by-month-guide/

Thank you all again!

admin answers:

I am by no means totally educated on the fact, but I am fairly certain that autism is not something that is diagnosed in infants. It becomes apparent in toddler hood and a lengthy observation period follows before a true diagnosis of autism. If your baby is unresponsive to stimuli and not smiling, there could be literally hundreds of other reasons. Your baby is only 3 months old, I would not stress out until you know a bit more information. But please try and relax in the knowledge that autism is not apparent in a 3 month old baby.

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Question?: Pdd-nos

Sandy asks…

Should my oldest child with Aspergers or baby have their own room?

My seven year old son has Aspergers and my five year old son has PDD-NOS. They have been sharing a room for the past few years but my oldest has started to ask for his own room. The problem is, I have a one year old daughter and we live in a three bedroom house. I don’t know if I should give the boys their own room and put her in our bedroom. If anyone has any insight or suggestions I would really appreciate it!

admin answers:

Nobody knows your kids like you. Nobody knows the specific issues your Aspergers and PDD-NOS kids have like you do. Nobody knows how often your 1 yr old climbs in with you anyway or how well she does in your room. So nobody here can come close to saying what *you* should do.

That said… We have a *tiny* three bedroom house with four kids (13, 6, 4.5, and 3yrs) and are expecting our fifth. My oldest has Aspergers and we suspect the 3 yr old may as well. So far the 6 yr old is the only girl.

One bedroom is so small we just used it as a ‘computer room’ for years and put all the kids in the biggest bedroom… But the youngest actually slept with us. But with the oldest being so much older we finally moved him into that room alone last year. Now the others still have the big room and the new baby will be sharing with us.

With your boys being so close in age… I personally like the idea of giving them the big room and ‘splitting’ it for them. However… I don’t have a clue what sort of Aspie issues you are having between the two of them. That would be the deciding factor to me. If they really *need* their space and the little girl likes sharing your room… That would simply make more sense for you. But if they are only asking for their own room and not really showing signs of *needing* it… I think I’d leave them.

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Question?: Autism Signs In Toddler Girls

George asks…

Could this be a sign of autism?

My 2 year old niece has been living with me and my parents for about 8 months now. Her mother is in the Marines and her father left them as soon as he was out of the military and she was only 1 year old.
My mom really believes that the little girl is acting out because she is not with her parents. When her mother does come to visit during the weekend, she yells at her and says things like “what the f— do you want!?”…
The little girl has a real bad habit that at night, she throws fits when it’s bed time, if we say NO to her or she gets real angry (this happens when she doesn’t get her way or we take too long with her bottle, etc..) she bangs her head on the floor and bites herself. We have told my sister that she needs to take her to the doctor and explain to him what she does, all my sister says is that it’s not big deal “she’s just a brat.”
Could this behavior be signalling something more serious?
Olivia J.. It’s actually the girl’s mother who yells at her and says thing like “what the f— do you want” to her own child… The mother is no better than her father… She is an alcoholic who sleeps soundly at night while her little girl is living with us and acting out terribly.
Just this morning, we were all awake becuase she was having an episode. She was screaming, crying, rolling around the bed, throwing herself on the floor… My mom and dad had to finally just take her out for a drive… She went to sleep at 5 in the morning…

admin answers:

First of all,.. You are a very kind aunt and thank goodness this innocent child at least have you and her grandparents. Her behavior is not Autistic.. Just the terrible 2s.

I have a toddler and “NO” is something we try not to use since it is a sure trigger for a tantrum. We often use distractions instead of directly saying no. Also toddlers have zero patience and no idea about time so they always want instant gratification… So got to keep them occupied while waiting and give a lot of attention. They love/need to hear you talk to them and narrate what you are doing. This is how they pick up words and learn to talk.

I understand why you are still giving her the bottle at night. It is a soothing comforter for young children and she needs all the comforting in the world she can get.

I think what your niece really needs is stability and a warm loving environment. Her mom’s obvious lack of concern is making her very insecure and starved for loving attention. Throwing a tantrum until 5am, while her Mom sleeps, is a good example of her very real need to get mom’s loving attention.

Please ask your parents to talk to your sister about keeping away from her daughter if she can’t behave like a mother. This girl has been through enough turbulence so early in her life and her mother should know it very well. Maybe your sister needs professional counseling to get her life back on track.

May good fortune bless her and your family and give her a loving home..!

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Question?: Rett Syndrome Research

Mark asks…

rett syndrome?

Hi all>
Im doing some research on the genetic disorder Rett Syndrome (RS) & I am looking for some first hand accounts of the early stages
Ive frequented IRSF & MANY other rett syndrome pages but I am really looking for some information from people who have dealt with it on a hands on basis>
My biggest area of interest/curiosity is about the first “signs”

what were your first clues that something wasnt right
was it drawn out or did it just seem to happen overnight

admin answers:

I worked with a child that had RS and her parents told me she was originally diagnosed with CP. It was very difficult to tell the difference between the two.So it was drawn out. The little girl was 2 1/2 before she was properly diagnosed. One main difference between CP & RS is that with CP when you learn something you keep the knowelege and remember things, with RS you can learn it and loose it. This little girl I worked with could not walk or talk but she could feed herself with her hands and crawl a little. By the time she turned 5 she had lost everthing she had gained. She could no longer swallow her food feed herself or crawl. Her Dr had to put a G button in to do tubal feedings and then she was put in a kid cart because she couldnt get around on her own. I hope I helped but this is the only knowlege I have of RS….

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Question?: Autism Signs In Toddler Girls

Paul asks…

How good is eye contact supposed to be in a toddler?

I have a 19 month old little girl who is extremely smart. She isn’t speaking yet and we are getting early intervention for her language/cognitive skills. Her pediatrician, speech therapist, interventionist, and playgroup director have all told me she is not autistic (or seems to be) and really just needs a jump start to better her communication and speech. I always thought that she had good eye contact. I never thought that she had a problem looking at me. However, recently, I’ve noticed that it’s been harder to grasp her eye contact. Of course it’s still there but she seems so much more into things and busy. If she’s playing with something, she won’t even turn to me anymore unless I say something that sparks her attention. I’ve looked at other kids her age and they seem to look right into my eyes. Is this something common of children her age or is this something that I should bring up at intervention. I would like some opinions of those with other kids. Thanks!

admin answers:

I would definitely bring it up. Lack of eye contact can be an early sign of autism. I’m not saying that’s what it is but any information that you think is important should be brought up. When you talk to her, does she look at you? It’s normal for kids to be so engrossed in an activity that they hardly give you the time of day. When you do get her attention, does she look around you or is it brief eye contact? Again, I would bring it up. If it’s worriesome to you, it’s worth noting. Good luck to you and your daughter! 🙂

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Question?: Autism Signs In Toddler Girls

Susan asks…

Mommies to tots with autism..?

How do toddlers or kids act around other kids? Are they just kind of stand offish or shy? Do they still go play likes it nothing but just ignore the other kids? How exactly do they act around other kids? My son is possibly autistic. He is 27 months tonight we was at a birthday party at first he would only stay right by my side I took him into the bedroom to play with the other kids. I had to sit there with him let him get comfortable and then he stayed and played at first he would instantly come find me but eventually he was in there on his own for a good while. I did seek a peek a lot. Sometimes he was playing by himself and other times he was right there with a group of kids. How do they act?
Thanks! He doesn’t have a lot of symptoms of autism. He just isn’t talking much, doesn’t point to things unless he can touch them, and sometimes flaps and jumps and isn’t to hot on kids but other then that he doesn’t have any of the other symptoms (eye contact, aloofness, fixation, not responding to name etc) So if he does have it I would assume him to be mild.

admin answers:

My son is 2 1/2 he was diagnosed with autism at 20 months. My sister has a daycare and I try to take him up when I can so he can interact with other children. His reaction no lie is he acts like he doesn’t even see them. One little girl put her head on his lap and he never even looked down.

If he is not showing any other signs I wouldn’t be too concerned. I had me a shy little boy 18 years ago, he is just now starting to let loose, God help us all. Lol

I just pray and keep trying to encourage him to play with others. God bless

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Question?: Autism Signs In Toddler Girls

Laura asks…

Physical Symptoms of Autism?

If a child has Autism, does it affect his height or weight? Is a child with Autism more likely to be overweight?

Also, what type of problems of general health do people with autism? (heard one was Gaustro problems?)

And finally, how are Gross and fine motor movements affected by Autism?

admin answers:

Symptoms of Autism
From Lisa Jo Rudy,
Your Guide to Autism.
FREE Newsletter. Sign Up Now!
About.com Health’s Disease and Condition content is reviewed by Steven Gans, MD

All Autistic People Do Not Look Alike
There’s a saying in the autism field: “if you’ve met one person with autism, you’ve met one person with autism.” In other words: every person on the autism spectrum is unique, and one person’s set of symptoms is just that … One person’s set of symptoms! This is, in part, becaue autism is a spectrum disorder: you can be a little autistic or very autistic.
But there’s more to it. There are also a wide array of problems which are relatively common among autistic people – such as seizure disorders, gastrointestinal issues, mental retardation and mental illness. At this point, no one knows why these conditions are so common among people with autism spectrum disorders. It is possible that these additional conditions are indicators of different kinds of autism, each caused by a slightly different set of circumstances.

While the conditions listed above are more common among autistic people than among the general population, they are by no means universal among people on the autism spectrum.

Sponsored Links
Autism & Toddlers
Symptoms Of Autism & What To Do If You Suspect Your Child Is Autistic
www.Parents.com

Autism Spectrum Schools
Programs & services for LD students Chance to achieve their potential
www.SpectrumSchools.com

Autism Recovery Happens
From Tragedy to Triumph. A Little Girl Recovers w/ the Help of Mozart
www.AwakeningAshley.com
In fact, there are many autistic people with no apparent mental or physical illness at all.

What Do Autistic People Have in Common?
Top Autism Myths
Top Ten Terrific Traits of Autistic People
Social and Communication Symptoms
Most of the time, autism is suspected in a child or adult because of deficits or stereotyped differences in social and communication skills. Some examples of these differences include:
Delayed or unusual speech patterns (many autistic children, for example, memorize video scripts and repeat them word for word with the precise intonation as the TV characters)
High pitched or flat intonation
Lack of slang or “kidspeak”
Difficulty understanding tone of voice and body language as a way of expressing sarcasm, humor, irony, etc.
Lack of eye contact
Inability to take another’s perspective (to imagine oneself in someone else’s shoes
While many autistic people have terrific language skills, there are many who have no language at all. In between are people whose verbal skills are idiosyncratic: they may be perfectly able to talk, but have a very difficult time with conversation, small talk, and slang.
Communicating with PECS (Picture Exchange Communication System)
Speech-Language Therapy and Autism: The Basics
Social Skills Therapy and Autism: The Basics
Book Review: Unwritten Rules of Social Relationships
Sensory and Motor Symptoms
A majority of autistic people are either hyper or hypo sensitive to light, sound, crowds and other external stimulation. Some have both hyper and hypo sensitivities. This often results in autistic people covering their ears, avoiding or reacting negatively to brightly lit areas, or – on the other hand – crashing hard into sofas and craving strong bear hugs.
While it’s unusual to find an autistic person who is obviously physically disabled as a result of the disorder, most autistic people do have some level of fine and gross motor difficulty. This often manifests itself in poor handwriting, difficulty with athletic coordination, etc. As a result, when autistic people get involved with sports, it’s usually in individual, endurance sports such as running and swimming.

Physical Therapy and Autism: The Basics
Occupational Therapy and Autism: The Basics
Sensory Integration Therapy
Personality Differences
While autistic people do differ from one another radically, it is fairly typical for people on the spectrum to:
Engage in repetitive behaviors and ritualized activities, ranging from lining up items to following a rigid routine,
Have one or a few passionate interests,
Have difficulty in making and keeping multiple friends,
Prefer activities that require relatively little verbal interaction.
It also seems to be the case – for as-yet-undetermined reasons – that certain interests are of particular interest to many people on the autism spectrum. For example, an enormous number of young children with ASD’s are fascinated by trains (and the Thomas the Tank Engine toy), while a great many older children and adults on the spectrum are very interested in computers, science, technology, and animals.

Tips for Understanding and Managing Your Autistic Child’s Behavior
Play Therapy and Autism: The Basics
Behavior Specialists and Autism: The Basics
Developmental Treatments for Autism Spectrum Disorders
References:

The National Autistic Society, London, England. “Do children with autism spectrum disorders have a special relationship with Thomas the Tank Engine and, if so, why?” Research undertaken by Aidan Prior Communications. February, 2002.
National Institute pf Mental Health, Autism Spectrum Disorders (Pervasive Developmental Disorders) A detailed booklet that describes symptoms, causes, and treatments, with information on getting help and coping. 2004
Greenspan, Stanley and Weider, Serena. “Engaging Autism.” Da Capo Press:2006.

Updated: May 21, 2007

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Question?: Autism Symptoms In 3 Year Old

Susan asks…

Child who fixates on an idea/object and will stay with it for HOURS?

I am a preschool teacher and I have a 3 year old who is constantly unfocused in class. She will fixate on something, today it was princesses, and she will NOT stop talking about it or asking questions about it. We play music throughout the day and she’ll fixate on “something being inside the radio.” Is this a condition or a symptom of something more serious? Help/suggestions appreciated.

admin answers:

I could possibly be a sign of autism but could just be that she’s inquisitive. Depends if she has any other problems such as behavioral and being ‘behind’ compared to other children. A little boy I know has autism and they spotted it early on in nursery b/c he just wasn’t keeping up with the other kids development wise and was just a little ‘different’ than the others but luckily it is only mild so he still remains in mainstream school. This could be the case for this little girl, what you’re describing is certainly one of the autistic traits but all kids differ so best thing to do would be just to keep an eye on her and if you have any further concerns then take it down the official route to voice your concerns.

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Question?: Rett Syndrome

Jenny asks…

I need range of motion or leg and ankle stretch tips for a 9 year old girl with Rett Syndrome.?

I work with a little girl who has Rett Syndrome, and her leg muscles are generally very tight and she has problems walking, which is not uncommon for children with this disorder. I’d like to find some stretches that would be beneficial to her, and how to apply these stretches correctly.

admin answers:

I think your best bet is to go on the Rettnet (sign up at www.rettsyndrome.org) where there are hundreds of parents and therapists with great advice.

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