Tag Archives: Group Home

Question?: Autistic Disorder

John asks…

Autism reported to get worse with a patient?

I have been talking to care staff that work with an autistic man, who is siad to be getting worse autistically.

The mans mother claims that in the past, he was able to ride a bike, go out for walks, run, play and so on when he was a child.

However, his mother claims that it is because he is on medication today and that this is why his behaviour has got worse with time.
She would like him to come off medication.

His dose of medication has been reduced, but not much of a behaviour difference has been observed by the staff.

As I understand it, AS and Autistic disorder remains unchanged in its magniture through out life. But there are variables that can make its effects more or less noticable, such as adolescence and becoming an adult.

In many cases, as such people grow to become adults, I hear reports of a decline in such behaviour.

Can this condition become more or less severe in terms of brain structural damage?
If so, why?

admin answers:

Cosmic… The question wasn’t regarding a child, but an autistic MAN who, I’m assuming, is in a group home.

You didn’t state if this is a new medication or he’s been on it awhile. If it’s a fairly new med, first of all why is he on it? Second, maybe it needs to be lowered more? Or, a different one tried. All of these can affect change in any individual,so they really need to be thought about for the individual, not just as the group as a whole. Asperger’s and autism CAN and often do change throughout the person’s life, depending on what is being done with that person. As they mature, they can learn to live with it better, some even covering it up better. But because it affects them socially and emotionally, the way it affects them can change depending on their situations. For my son, I notice changes in him if he’s sick or getting sick, too tired, hasn’t been stimulated enough sensorily, or he’s been over-stimulated. Those are just a few of the things that bring about temporary change. Long-term changes can be (in terms of improving) brought about through working with the individual, helping them learn self-control, etc. Problem is, as an adult, they’re usually not as open to change and won’t cooperate with it, so typically there is ‘less’ change when they hit adulthood. Now, in terms of regression, what is his day like? Is anyone trying to stimulate him, or engage him in his world, or are they just leaving it up to him? He might be going through a rough spot like we all do, not feeling motivated enough to do the things he was doing. If that came about after starting the meds, I would say his mom is right. So, really you have to look at the things leading up to his regression, what is being done to try to help him out of it, and how responsive he is. Maybe his mom could try getting him to do these things. Really, even though he’s autistic you’re still dealing with an individual personality who is going to have ups and downs. It’s just that with autism, they’re usually much more pronounced, more severe. In terms of brain structural damage, what has he been exposed to? I’ve seen with my son that changes in diets, changes in chemicals that he’s exposed to, will drastically affect him. Check to see if the cleaners used to clean around the facility have been changed or increased in the amounts being used. Maybe a new employee is using too much of something, and that’s affecting his ability to function. I realize this isn’t actually structural damage, but these things drastically affect how they function, their ability to process.
Hopefully this gives you some different things to look at to find the culprit. I’m hoping this facility is respecting the mom’s wishes, though, if the only deciding factor ends up being the meds?

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Lisa Long is definitely on target.

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Lisa Long was interviewed on CNN today. She has a big problem with her son. He needs a group home.

To get your son a group home and on some meds.

  1. You have to take your son to the hospital when he is either capable of hurting himself or someone else. You have to be prepared to leave him there for the duration, whatever that is.
  2. They will want to keep him there for three days for observation. Since these fits of rage don’t last that long when the three days is up he will probably be fine and they will let him go. Or want to let him go. In order to get ready for this day however you should have yourself made the plenary guardian. This way you have something to say about it especially if your son is over 18 and can speak for himself. This is something you don’t need. After three days they’ll tell you they must get rid of him because he is not bad right now and they can’t see a reason to hold him.
  3. This is the point where you can win or lose. What you have to do is get him in a group home that has 24 hour supervision. So you have to insist that you do not want him anymore and you want to leave him there as a ward of the county.
  4. They they will whine and tell you a long story about how there is no money and always other problems.  Just pick up your purse and walk out the door, and as hard as it sounds you just have to abandon him there for your own good as well as his own good.
  5.  He needs some new meds for this beta rage and yes this is called beta rage.  Try something new on him. Apparently this product is been around for a while but is new enough to be very expensive. Since the county is in charge of him Do not concern yourself with that but I can’t say that as expensive as a shot is, it’s cheaper than the alternative.
  6. This injection lasts 30 days and it is called Invega Sustana. This drug comes in pills but does not work as well.  I believe it will help quite a bit, that is if she can do it.