Tag Archives: Best Of Luck

Question?: Treatment For Autism Spectrum Disorder

Robert asks…

has anyone heard of The Marcus Institute?

here in Ga. only (i think). they offer many different treatments for a great deal of developmental disorders,i.e., autism spectrum disorder,asbergers syndrome and many more.
i have my daughter Sierra involved with this program and i welcome any info or comments about this institute.

admin answers:

I have not heard of The Marcus Institute, but one you may want to check out is Dore Achievement Centers. Best of luck!

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Question?: Rett Syndrome Causes

Sandy asks…

Is my baby just delayed, or is something wrong?

Hi, my daughter will be eleven months old on the 30’th, and she can’t crawl, sit up from a lying position, walk, pull herself up to standing position, or stand at all on her own. All she can do is roll around and sit up (when I sit her up). She can stand with help. She has just started eating a little harder foods like puffs and toast, and just mastered the pincer grasp. I am worried about her large motor skill development though. Is she just a late bloomer, or do you think something may be wrong?

admin answers:

Well, yes she’s definitely delayed but the thing you have to worry about is the cause of the delays. You need to take her to a neurologist and geneticist to investigate the cause. My daughter had the same problems…she turned out to have Rett Syndrome. I’m not trying to scare you, there are a lot of possible causes.. Some severe, some not so severe. If it was just motor problems from hypotonia (low muscle tone) I would not be too worried but she seems to have other delays that would indicate global developmental delays meaning possibly a larger problem. It may be just mild cerebral palsy and she will eventually catch up but definitely get her checked out to rule out other things. Also make sure they test for Rett Syndrome…my daughter has this and it is commonly misdiagnosed as other things. Best of luck to you and I hope you find the cause.

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Question?: Autism Signs In Infants

Michael asks…

What to expect at speech pathologist evaluation with 9-month-old?

My son is 9-month-old and he is not babbling (at all). We’ve been signing with him and he’s never signed back, either. He also has problems swallowing thin liquids, but he can drink his bottle because we thicken it with rice cereal. The pediatrician wants us to get an evaluation with a speech pathologist to check language and swallowing. What can we expect? What kinds of tests will she perform? What sort of therapy is possible for this age? Besides reading, signing, and talking as much as possible (which we’ve always done), what else can we do to speed language development?

admin answers:

At 9 months most of the evaluations will consist of the therapist looking at the physical structure of his mouth, teeth, gums, tongue, etc, observing him as he plays, and asking you lot of questions.

As he is not babbling at all you may need to take him to an audiologist who works with infants to have a specific type of hearing screening done. It consists of them measuring what sound is reaching your son’s brain. (I am just assuming that you haven’t already had this done.)

If it turns out that your son is deaf or has autism or is just severely delayed, than getting that diagnosis this early is crucial because it will allow for very intensive therapy for him while his brain is still very plastic.

I am not sure what therpy would look like for a 9 month old child but I imagine it will be a more intensive and targeted version of what you are already doing-talking, singing, reading and interacting as much as possible with your child. The therapist will probably spend a lot of time teaching you what to do for your child at home.

I wish you the best of luck with your child. Although I don’t work with infants, I do teahc special education and have 4 years of experiance with preschool children who are delayed. Please dont’ hesitate to e-mail me if you have any more questions.

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Question?: Treatment For Autism In Babies

Chris asks…

What are the first signs of Autism / Developmental Delay that you start to see when they are a baby?

admin answers:

I second everything that Robin wrote. My son was just like that too. He would even break down if someone cleared their throat. Today we use headphones for the auditory. After I taught him to read and write he was able to use a Dynavox which has brought much fewer meltdowns. He is 8 this year and he just pointed for the first time last month. We don’t do any kind of treatments or special diets. We just love and accept him for who he is. Give him patience to learn at his own pace and style even if it means coming up with 50 different ways to teach the same thing until you find one that clicks for him.

I once read a t-shirt that said “Autism isn’t a processing error, it’s a different operating system.” If you can remember that and learn the different system they run you can better understand how they experience the world. My feeling is that autism isn’t a tragedy but an adventure. Simply by experiencing the world differently an autistic person has greater potential to become an innovator. The intense focus that some see as obsessiveness I see as beneficial for reaching a level of expertise in a chosen field. After all a jack of all trades is usually a master of none.

If your child is autistic figure out their triggers and motivators first and the rest will fall into place. Stay positive and best of luck to you.

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Question?: Schizophrenia

Thomas asks…

How bad is schizophrenia? How bad is it to live with schizophrenia in reality?

I am having trouble sleeping all through the night and I’m afraid that schizophrenia may be setting in…I assume the worst (schizophrenia) instead of anxiety, depression or just plain old insomnia, because I have a family history of severe mental illness…please let me now what onset schizophrenia is or is like, especially if you or a loved one has schizophrenia. thank you.

admin answers:

I’ve known a few people who have had schizophrenia. It is truly a frightening disease. I admit to hearing voices almost every day, which tell things that I don’t want to hear sometimes. They’ll tell me to do things, insult me, and just talk to me sometimes. It happens especially when I am alone. At night it is horrid, especially if I sleep on a floor (goes with a demon I think is taunting me). My pillow and blanket would literally play music. It’s like, if I think about a song, I can hear it. My brother doesn’t think I have it, but I know what I’m going through, not him. But whatever, you know? If you believe you need help for it, go get some if you can. You begin to confuse fantasy and reality, which is very confusing when you’re trying to think back to what happened when people tell you otherwise.

If you are unable to get support from family like I was at first, I can give you a think for support. It’s a wonderful community– the people seem to understand you, even if they don’t have the same disease.

I hope things don’t get worse for you. It’s no fun. Best of luck.

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Question?: Treatment For Autism In Toddlers

Richard asks…

Autism question: young toddler already showing signs?

I have a young toddler showing some signs of autism already. The pediatrician has brought it up briefly and will prob setup some sort of screening test for it soon. I believe if he has it its not at the highest level.

I personally don’t know a ton about Autism, are there different levels of Autism?

Can it get worse or better with therapy?

What causes Autism and is there any medication to help in the future?

I always thought Autism was another name for a learning disability.

admin answers:

There are definitely different levels of autism. It can range from severe autism all the way to some simple learning disabilities. My son was diagnosed with PDD NOS at age 2, which is a mild form of autism. He basically has speech delays and some “quirks” in his personality as we call it.

The sooner your child is diagnosed and starts therapy, the better they will do later on. I highly recommend asking your pediatrician for a referral to a developmental pediatrician or neurologist. There is testing they can do (even at young ages) to see if your child falls on the autism spectrum, and then will recommend therapies/treatments.

Therapy definitely helps immensely. I have several friends who had mildly autistic children, and with intensive therapy, the no longer carry a diagnosis of autism. Its possible to overcome mild cases, or the diagnosis will change to something like ADD, etc.

There is no known cause for autism, but is mainly thought to be either genetic. Depending on what your child’s issues are, there are some medications out there that can help.

Like I said, I highly recommend getting your child evaluated by a developmental pediatrician or neurologist ASAP. I wish you the best of luck!!

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Question?: Pdd Autism

Mary asks…

Can anyone tell me how to handle dissapointments and roll with the punches and control myself?

I have PDD Autism and I’m have meltdowns when something dissapontments me and I can’t control myself. Can anyone help me?

admin answers:

I guess that I’m your “cousin”, in a way; you see, I am afflicted with Asperger Syndrome, which is also of the autism family. So let me tell you how I deal with what you are talking about, and maybe it will help.

Disappointments are a part of life, but even more so for autistic people. Understanding my affliction has helped, but what has REALLY helped is, to be blunt, God. Not the God that any religion teaches – because, as much as they may claim to not be, ALL religions are arrogant and self-righteous – but the personal God you can only meet through the pages of the Bible.

For me, my outlet has been to write about what I have found to be true, so I am including a link to my own personal blog site about the Bible. But the truth of the matter is: While no one “religion” is the absolute truth, ALL of them together ARE the truth. Find this, and you will find out how to control yourself when disappointments arise.

Best of luck to you.

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Question?: Autism Symptoms In 7 Year Old

Ken asks…

Do you have a child with high functioning autism?

My 2 and a half year old is being evaluated for this. At what age did you notice issues and what were they?

admin answers:

Yes, I have a 7 and a half-year-old daughter who has been officially diagnosed with HFA.

Every kid is different in the behaviours/symptoms they display, but the main ones that my daughter had were very late development of her verbal abilities, difficulties transitioning from one activity to another, lack of eye contact, lining up toys, and spinning/rocking actions known as “stimming”.

The main behaviors they are going to focus on when they evaluate your child are going to be in several areas. They will probably ask a lot of questions about how he/she interacts with others, as well as questions about whether or not he/she engages in imaginative play (most autistic kids don’t).

Since sensory issues are also a frequent feature of autism (at any functioning level), they will also ask if your child has issues with noises (likes to make noise or is especially sensitive to noise) or has extreme attactions or aversions to certain textures.

Autism is a relatively complicated condition; the sooner your child can get help, the better off he/she will be.

Best of luck to you.

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Question?: Treatment For Autism

Daniel asks…

What will it take for insurance companies to recognize autism as a neurological condition?

Insurance companies often treat autism as if it was a psychological condition to avoid paying insurance claims. My daughter needed general anesthesia to have a cavity treated by the dentist. The insurance company denied the claim stating: “General Anesthesia is not a treatment for autism“. We appealed the claim and lost… 🙁

admin answers:

This is insurance for you. My son had a bunch done a couple of years ago. Of course he gets medicaid so no problem just jumping through hoops. I would get the dentist on your case with the insurance. Find some proof that it is less stressful with the general. I know it is for the person doing the job. That is why they will more than likely be willing to help you. As far as seeing it as a nuerological condition don’t hold your breath on that one. They still don’t know what causes it, or even why some children with autism can communicate. If you live in a metro or bigger area I would find some local people that have also been through this. Wishing you both best of luck. A….

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