Tag Archives: Autistic Adults

Question?: Autistic Adults

Joseph asks…

Is anyone with autism on medication trying to reduce the learning problems?

To you autistic adults out there, do you take any medication to reduce your learning problems. And to the parents of autistic children, do you give them any medication to try reduce their learning problems?

admin answers:

I’m not an adult, but close enough to one to be able to answer your question. I’m planning on going on some medience because of my anxiety/depression, which is really not lighting up on me, and it’s been two years. I don’t have any learning probelms persay though, so I can’t really take any. I found that resipodal was really helpful when it came to giving me more attention, and it didn’t make me feel drugged out. It has a couple side-effects (like low blood pressure), but if you have a low dosage, you shouldn’t have it as much
I have to go to school now, but I hope this helps.

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Question?: Treatment For Autism In Adults

Chris asks…

Society is concerned with children who have Autism, but is there not enough attention to children whose parent?

or parents might have Autism? Would this greatly affect the children’s upbringing, if a parent had Autism, which was undiagnosed, and caused them to act strangely

admin answers:

Society does not pay enough attention to adults with autism, period. Adults with autism are a forgotten and underserved group, as if people think autistic individuals grow out of it or disappear from the surface of earth when they reach adulthood. Diagnosis, treatment, research, articles, educational material etc. Is pretty much all focused on children with autism and their parents.

Many autistic adults are undiagnosed or misdiagnosed and some have been diagnosed in adulthood but still have nowhere to turn for help.

Some of those adults have children and some of them do not. Some of those who are parents have done a good job raising their kids, with or without support from others, and some have not been able to handle it as well. Autism varies so much between individuals that the upbringing by parents with autism varies a lot too. I know a few (diagnosed) adults with high functioning autism who have children and are doing a fine job raising them. I’m sure that there exist others who don’t deal with it as well though and I’m not sure what (if anything) is being done about that.

While the upbringing of children whose parents have autism may not necessarily be affected in a negative way, I do think society should pay more attention to it and be more prepared and willing to help if necessary. I think there is need for more supportive services for adults with autism, both those who are parents and those who are not.

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Question?: Autism Symptoms In Adults

Jenny asks…

Why should autistic people not work in business?

I was reading an article about jobs that are recommended for autistic adults and the article mentioned that business should be avoided. I can understand counselling or social work…but business too? Can someone explain this, is there a lot of social interaction involved?

admin answers:

Anyone who experiences some of the range of symptoms that people with autism frequently have is going to have greater challenges than most people would in almost any line of work; that’s just a given.

But the same could be said of anyone with a visual or hearing impairment, issues with fatigue, ADHD, limited use of their upper extremeties, you name it — yet most of us manage to work despite whatever physical or cognitive impairments we might have to contend with. ALS hasn’t stopped Stephen Hawking; blindness hasn’t stopped Stevie Wonder and – I forget the actor’s name – the guy who plays the coroner on CSI hasn’t let the fact that he’s a dual amputee keep him from being on a wildly successful TV show.

I help people with disabilities start their own small businesses. For me, concern #1 is whether the person I’m working with has the basic training and experience necessary to operate the type of business they want to start. Concern #2 is whether or not there’s a legitimate business opportunity to be exploited (if we build it, will they come?). Finally, concern #3 is if and how we can find reasonable accommodations to enable the person to do the job despite any impairments they may have.

Critical skills for business-related work:
1. Effective communication verbally and in writing
2. Planning skills
3. Problem-solving skills
4. Ability to handle bookkeeping, budgeting and record-keeping
5. Ability to be flexible, juggling multiple priorities

As you said, persons with autism may have difficulty with interpersonal interactions, multitasking or working in high-stimulus enviroments, for instance. I’d work with the entrepreneur to see how we could minimize those facets of the job and/or to find alternative means of handling those dimensions. Could more customer interaction be handled via email for instance? If so, would that help? Could the business support the wages of a second employee who could more effectively handle the personal selling aspects of the job if that was an issue? And so on.

Any person with Any disability should be open to considering Any job that interests them. However, that person and anyone who’s assisting them in making a career choice need to be creative, pragmatic and thorough in determining up front if and/or how they might be able to do the job in question given their impairments. There’s not always a “fix” to be done, but you’d be amazed how often there is a creative solution.

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Question?: Autistic Adults

George asks…

What is the best way to find private art students in Los Angeles?

My son is a professional artist with a good degree. He is privately teaching young autistic adults in Los Angeles and would like to find more students, either mainstream or special needs. Does anyone know of good places to advertise? Thanks!

admin answers:

The best way to cast a big net out there today seems to be advertising on craigslist.com under Services Offerred>Lessons and Tutoring or and under Communities>Artists.

A smaller approach in his immediate area would be to contact schools in his neighborhood at whatever level(s) he would like to teach. Many schools have lost their art programs and classroom teachers might know of students who have shown an interest in or talent for art. If there is an art specialist, this would be the logical contact to find students who would like to go deeper into art than class time allows. Also, with his special needs experience, contacting the special ed supervisor would make sense.

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Question?: Autistic Adults

Lizzie asks…

How do i go about becoming a child physciatrist?

I currently am working with autistic adults and have a NVQ2 and NVQ3 in health and social care, i also have key skills and many more certificates for short courses. I have always been intrested in this field of work, could any one tell me how i could go about this. Financially i can not afford to go to college full time so is there any other way to achieve my goal?

admin answers:

Psychiatrists are Md’s. That means med school and all the time and money that entails. Psychologists usually have at least a Masters and most work for a PhD. Each government has its own rules. Find out what they are where you live. In the US it’s state by state.

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Question?: Treatment For Autism In Adults

Chris asks…

Why is there controversy over the Combating Autism Act? What does it involve?

Autism is not a mental illness, but a neuro-biological disorder. But I’m not sure what category would be best for this question. I hope placing it here in the mental health section does not offend anyone. If it does, I’d like to apologize.

Ok, what exactly is the Combating Autism Act, and why are many parents of Autustic children, and many Autistic adults against it? Will this act find ways to prevent children with this syndrome from being born, or will it simply spread awareness about Autism, and provide treatment so that Autistics can function with more ease in society?

Would this also apply to people with Aspergers? Also, what will this mean for adults who have gone undiagnosed for years, only to find out at 20, 30, and older they have an autistic spectrum disorder? Will they be ostracized even more if Autism is eventually gotten rid of in the future? I’m confused and interested in hearing both sides. Thanks.

admin answers:

The Combating Autism Act is all about diverting funds to research a way to detect autism while the child is in the womb. There already is such a test for cystic fibrosis, spina bifida, and Down Syndrome. I cannot speak for CF or for SB, but I can for the DS. This sounds great, I know! I thought it was at first. My 5 yr old is autistic, and I would have loved to have known in advance that he had it, to have time to prepare, to research, to be more understanding from the start. What I learned though is that after this test for Downs was approved and in place, fewer babies were born with Downs, because the parents chose to abort the babies. A lot of us are seriously against the act because as parents of children with autism, we KNOW that even though our children have serious challenges and life isn’t always fun, our kids are so wonderful! They have moments that just blow you away, and can be so full of love. But, I can guarantee you that parents will not be told this when they test positive, and how unfair is that to abort a child with only hearing the scary, unknown possibilities? I took that stupid test for downs with my youngest child, and it came up positive, although I don’t remember the ‘chance’ they gave, but it was a high chance. I refused to take the amnio, because that can cause miscarriage and babies have been damaged from this. The specialist did everything he could to talk me into aborting my child, because of ‘how difficult it can be to raise a special needs baby’. If I wasn’t strong on my stance I probably would have aborted. How sad is that? My child didn’t have Downs! I found out that that test is not very accurate at all, that there is a high percentage of false positives. So, how many little lives were lost because of one-sided information and fear? It’s our fear that the same exact thing will happen with autism. Thing is, Autism Speaks, one of the biggest fundraisers for autism research, supports the combating autism act, so I don’t support them or any of the other high profile companies. If they would instead focus on testing these children AT BIRTH to determine if they had it, I would give them every dollar I have. But, I cannot and will not support a cause that ‘could’ basically cause a whole ‘type’ of people to be erased from the planet. Here’s a link for you to look at, it’s the one that started opening my eyes.

Http://www.youtube.com/watch?v=B9yFsQm2Bp4

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Question?: Autism Symptoms In 7 Year Old

Susan asks…

Autism and 2nd set of vaccines?

I found out something interesting about my brother who has autism. I was going through some paperwork his teachers filled out about him and when he was 7 the teacher reported that he was developing normally as a 7 year old. Then next years I noticed that all the comments detail him regressing. I remembered that he got his 2nd set of vaccines that’s in the controversy at age 7. I wanted to know what others think about this? The second set might have stumped his development just like the the first set?
Hmmm….charalatans? The government can lie….and who funds scientific research?
It’s easy to say that vacines aren’t linked to autism when you don’t personally have the burden of taking care of an autistic person yourself like I have. You only see the facts but when it’s in your face 24/7 you start to think. When you know your family members better than a scientist or doctor you know your true answers and you don’t need a professional to tell you what’s wrong because you’re just a statistic. They just don’t know autism.
At the alarming rate I think this country is going to get wiped out because autism kids turn into autistic adults. If you’re lucky your child will high functioning but if you’re not then…..that is it. I think you can figure out what happens, someone has to take of them. Or they become homeless….I don’t know maybe the government will do something?

admin answers:

It is possible for vaccines to cause neurological damage at any age.

Edit: Science funding can be very political. Http://www.ageofautism.com/2010/01/naked-intimidation-the-wakefield-inquisition-is-only-the-tip-of-the-autism-censorship-iceberg.html#more

LOL, “Weise Ente.” Wakefield published a “case study”–look it up — of 12 autistic kids, whose parents took them to him to look at their gastrointestinal problems, because he is a gastroenterologist. The parents happened to mention to him that the problems started after the MMR. Wakefield wasn’t even sure if he should mention in the case study that the parents told him that, but decided to, since the more information, the better. And, as a parent, I know that parental observations are very valuable in health care. So how exactly do you try to replicate that case study? That isn’t the type of study that can be replicated. Case studies by their nature are a call to further research, not the same research, lol. He made no conclustions regarding the MMR in the paper. Anyone can verify that for themselves. The paper wasn’t very long.

“BACKGROUND: We investigated a consecutive series of children with chronic enterocolitis and regressive developmental disorder. METHODS: 12 children (mean age 6 years [range 3-10], 11 boys) were referred to a paediatric gastroenterology unit with a history of normal development followed by loss of acquired skills, including language, together with diarrhoea and abdominal pain. Children underwent gastroenterological, neurological, and developmental assessment and review of developmental records. Ileocolonoscopy and biopsy sampling, magnetic-resonance imaging (MRI), electroencephalography (EEG), and lumbar puncture were done under sedation. Barium follow-through radiography was done where possible. Biochemical, haematological, and immunological profiles were examined. FINDINGS: Onset of behavioural symptoms was associated, by the parents, with measles, mumps, and rubella vaccination in eight of the 12 children, with measles infection in one child, and otitis media in another. All 12 children had intestinal abnormalities, ranging from lymphoid nodular hyperplasia to aphthoid ulceration. Histology showed patchy chronic inflammation in the colon in 11 children and reactive ileal lymphoid hyperplasia in seven, but no granulomas. Behavioural disorders included autism (nine), disintegrative psychosis (one), and possible postviral or vaccinal encephalitis (two). There were no focal neurological abnormalities and MRI and EEG tests were normal. Abnormal laboratory results were significantly raised urinary methylmalonic acid compared with age-matched controls (p=0.003), low haemoglobin in four children, and a low serum IgA in four children. INTERPRETATION: We identified associated gastrointestinal disease and developmental regression in a group of previously normal children, which was generally associated in time with possible environmental triggers.” http://www.ncbi.nlm.nih.gov/pubmed/9500320

After what happened to Wakefield — he was driven out of his own country! — what scientist, with the average amount of courage, who has a career to keep and a family to feed, would dare do a study that shows MMR is a problem? They have made an example of him, that is for sure.

You are right, Wakefield *is* a good example of how science works in controversial, highly political areas of study.

“photoart,” in response to your additional details, it is very sad to think about, but the government is going to warehouse the coming surge of low functioning autistic adults in institutions and keep them drugged up. There just won’t be the money or manpower to do it any other way. I know this is the nightmare of parents everywhere–what is going to happen to their autistic children when they can no longer care for them?

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Question?: Autism Symptoms In Adults

Ruth asks…

Is it common for high functioning autistic adults to live with their parents?

I have high functioning autism / aspbergers / a Pervasive Developmental Disorder. I have lived on my own and my symptoms became worse. I moved in and out with my mom – logically it seemed advantageous to both of us.

I was wondering if it’s common for autistics to be more prone to living at home – I don’t really understand it, it’s a little like a magnet.

I have trouble explaining this to others also.

admin answers:

I think that, as the other poster suggested, it has to do with routine. With your mom, you have an external schedule that determines a lot of your daily activities. If you’re on your own, you’re responsible for everything yourself. And that’s exactly something that is difficult for many autistics – all those little everyday tasks. Even if you can handle them, that’ll still demand so much of your resources that you’ll get into trouble elsewhere.
I’d suggest you check out this website: http://thiswayoflife.org/index.html There is a lot of useful information (look for Executive Dysfunction); and I guess that you can implement some strategies for yourself to get along on your own.

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Question?: Autistic Adults

Helen asks…

What are typical characteristics of an adult with autism?

I know it’s a huge spectrum. But in general, what are typical characteristics of a high-functioning autistic adult? The more specifics, the better. Thanks!

admin answers:

It never ceases to amaze me how little Neurotypical people understand about us.
I am going to write you a very long response that hopefully will give you a different point of view. It may seem like a rant, which very well may be true. You asked for more specific though so don’t be hating me for it.
I am autistic. I am concidered “high-level functioning” but I don’t like drawing lines of seperation. I can be referenced to Asperger’s which is the autism you ask of. I therefor am an Aspie. We Auties are a community of people in many places online and in real life. You can view first hand how Auties think on Live Journal, Myspace, You Tube even. Just search for autism. We are not disordered or disfunctional. We simply function in a different way that NT’s don’t seem to understand. AutismSpeaks.org is insulting to us.
Stop trying to cure us or prevent us. We are of life which must be diverse in all aspects of being.
Autistics.org is a site created and managed by auties where anyone can post questions or comments in different categories pertaining to autism.

As for your question:
The generalizations of our categorized neurodiversity include but are not limited to:

Speech impediment or delay due to an incompatibility between our minds way of thinking and the processing of english to represent these thoughts.
The english language is insufficient for us.
Our minds do usually do not think in a voice as yours likely does. We see pictures and feel emotions and interpret things into rational and logical ideals that words hardly encompass.
It is far easier for us to type out our thought in a more “real-time” sense.
Some of us have to use “templates” or prepared speeches that we store in mind to call upon in common social situations, like at work or school.
I have an astounding memory and so can recall much of what I’ve read or seen and appear intelligent when speaking.
I learn best through example, like working along side someone experienced, I will absorb every bit and piece of knowlege, I will figure out in my mind why they do what they do and simultaneously see a better, more efficient way, and feel compelled to tell them.
For this reason I am often made a leader or teacher.
I am not good at these things though because I falter under social pressures from people who tend to feel like I am picking them apart or trying to be better than them. They usually don’t like that I move ahead so quickley when they have been there for so long.
I am often sabotaged or mobbed.
My weakness is through influence. People seem to know this often like it’s written on my forehead.
My subconcious is very open, which is nice when I decide what goes in and take out what I dont like there… But sometimes people sneak things in and It takes me weeks or months or even years to work them out.
When this happens I shut down.Sometimes everything in my whole life falls apart. I lose everything. This has happened many times in my life. Still I can get no help and have none take me seriously except for other auties.
Other Auties who were raised in better environments call these episodes “meltdowns” and have methods for dealing with them quickley. They also tend to have support for other people. I do not. I suffer much.
None in real life have ever understood me fully.
My body movements are awkward, my style is non existent. I fail to have personality except with few I have known long.
I am a caring and thoughtful person with much to offer and yet I cannot get help.
Professionals don’t believe an adult can be properly diagnosed to have asperger’s. They want to call me bipolar or schitzophrenic. Some people link these to autism.

I love chicken nuggets by the way.

I wish every day that I could do the things in life that I could do given the right environment. I set goals to try and acheive that environment on my own… But it is so difficult, and seems it might not happen in this life time. So I resolve to make things better for my children. And then I am concerned about actually producing children who may end up suffering as I.
My girlfriend (who at times seems to be on the spectrum, but believes she is something entirely different although similar in ways) and one only true real life friend wont accept the idea of me not fathering my own children.
While the government is trying to cure diversity, people like me could really benefit from their help, but they dont seem to understand. So many organizations, like autism speaks, use words like epidemic and horrible and just so many derrogative words that are not going to give us what we need… A place in society to belong and live well and prosper.
So many of us want to make things better… And we have the drive and the focus and the fixation… We can do such great things. I can do such greatness.
Meanwhile multibillionaires soak up the wealth of the world and rather than share amonst all life which deserves to live happy, they benefit with caretakers and live-in-home cleaners,
accountants, lawyers, doctors, chefs, personal trainers, luxury, comfort, convinience.
Anyone would want these things that few take for granted, but many auties actually need this type of life style because they cannot handle any of it. Any of it. Life alone in a world of such demand is burdensome to the extreme. I have nothing left for cleaning and eating right and exercising regularly and doing my taxes, or seeing the doctor… I can’t even remember to shower regularly. I put on the same old clothes because I havent had the chance to do laundry in weeks. I am not lazy… You should see how much of myself is given away every day.
And still they want more and more and as more people learn of me, they also want of me.
I absolutely have to have time to myself regularly to “reset” or I get very moody and feel unhealthy.
I am very good at math, both logical and theoretical.
I am also very prone to music. I can play instruments without “knowing” how. I sing but only other people’s songs.
At one time I went to kareoke every weekend and people cheered for me and made references to american idol… Until they saw me faltering. Now I can’t find the confidence to sing in public. But I still sing every day at home. And I record myself to improve and listen carefully to songs over and over and over for hours.
I often have ideas of inventions or improvements on products I use or see. Sometimes I see my ideas later. I want to experiment with self perpetuating electricity generators. I have several concepts in my mind that I would build prototypes to experiment with.
I have this opportunity where I’ve bought a house that my girlfriend’s parents needed to get rid of because they couldnt afford to have 2. I made a deal with her father to a personal, interest free morgage for 30 years. The house is worth 270k
I offered 350k at 1000 each month.
This house has two apartments, one built on the back -360 sq ft. And one in the basement about the same size. Both with bath and kitchen. I can rent them out for more than the morgage. I want to build a second floor addition ontop to double the value for about 60k and alot of hard work. Then I can use the equity to build another house from scratch and sell it. Then I can become a builder of custom homes of my own design. Something I also want to do. Eventually I could be paying others to run my company while I venture into an original resturaunt. I want to distribute unlimited free, and non-poluting energy to homes worldwide. I would probably die for trying to put oil companies out of business.
Either way this is all conceptual. In my reality it would take 3 lifetimes to accomplish because I have to work so much to afford what little I have. My limitations would be solved by financial aid.
But the government would rather pay scientists and organizations to experiment with medications and look at genes for a combination they can detect when its possible to abort.
How would that make you feel?
Guess what else. I also have recently discovered that smoking marijuana gives me relief.
The government could throw me in jail anytime for this, or for tax evasion over the last 10 years for not filing tax returns and working under the table. I have many outstanding debts totalling over 30k. I dont have the power to confont these problems when they first develop, and I certainly dont have the will to overcome them now that they have grown so much bigger. I can’t even talk about them out loud even when I reherse for weeks. The stress of thinking about it is too much. I will die in Jail.
There you have only a small generalized portion of an insight into the life of a person wth high level fuctioning autism.
I hope it satisfies your curiosity.

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Question?: Autistic Adults

Sandy asks…

i have a 30 year old autistic daughter does anyone know any kind of learning tools for autistic adults?

I know the way to teach an autistic child is lot of repetion but there are learning tools for Autistic children but none that i have found for autistic adults anyone have any suggestions?

admin answers:

It really depends on what you are trying to teach the person, and how functional they are.

My children are both younger, but we use a lot of visual supports (the book suggested above is an excellent resource and worth the money) We also use a lot of computer programs. You should ask your daughter’s psychologist for his referrels to programs.

Also talk to her casemanager through your DEVDEL services. Anyone with autism qualifies over the age of 18, and they should have taken her through votech and rehab. They have the tools and the teachers, and she should have had access to that all this time. I’m sorry that you’ve missed those years of her learning.

I would also suggest contacting your local autism society group (www.autism-society.org, click on find support). While they may not provide direct resources, they surely will have suggestions. In our state, there are several social groups for adults with autism.

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